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Hi All,
don't start many threads but this is something that has been nigglig away at me and wanted to try nd get some advice please.
I am waiting for diagnosis, have a really good gp and first appt with rheumy said he thought there was some connective tissue disease going on in particular lupus. I had a positive ANA and the last bloods i had done in April came back positive aswell wirh rnp anti body so i know its possible i could be facing a diagnosis of mctd or lupus as i do have lots of physical signs and symptoms aswell.
In the past i have had problems that i feel could be relating to this and just wonder whether along with the other long list of symtoms i have its worth mentioning and whether this would influence the diagnosis as they are things the past.
I already have type 1 diabetes and hypothyroidism. In the past i have suffered depression, i also had pre eclampsia in 5 pregnancies which was a bit of a mystery to the obstetric world, on of my babies was born at 27 weeks after major placental abrubtion but luckily she had no long term complications. I have had several periods of dibilitation due to illness, where i have not been able to leave the house for about 3-4 months each time. On e of these actually happened when i was much younger, 12 i think and there was no explaination given for it. Along with lots of other things that now to me seem strange.
I am certain now that as my initial symtoms started in oct 07 and my thyroid disfunction came on so rapidly after that that my thyroid was caused by what ever is ging on now, even my doctor said that it got very bad very quickly which is unusual as it had been checked in oct and was fine and by end of jan my tsh was upto 49!
Sorry for rambling.
Would really appreciate any other comments please.Hope everyone else is doing o.k

Cassie
 

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Cassie,

I had things like growing pains, teenage headaches, allergic reaction to insect bites, hightemps, musce pains, allergy to septrin, lots of rashes.

Hope this helps! Check the alternative criteria and well as the normal one , I think both are listed on this site!
 

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Hi Cassie,

These traumas and long standing problems may very well be related. Have you told your rheumatologist? He/she should be told as it helps complete the picture.

I too had problems going back to childhood but didn't start displaying obvious signs or organ involvement until my 30's. Eventually all the pieces of the puzzle will be put together and you'll have a clearer picture.

hang in there.

X C X
 

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Looking back, I also have had issues steming back to my childhood.

I do think Lupus is like putting a puzzle together and eventually you get a clear picture.
 

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Hi Cad

Just to let you know how bad my thyroid bottomed out when I got CFS. It was 199 and the endo couldn't believe it. He said it bottomed right out. I don't feel any different fatigue from then to right now.

It took 3 years to get it straightened out.

Cindy
 

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Hi Cad,
It sounds very interesting for sure. I am sure you have noticed by reading posts, that is so much that goes on with us lupies. I understand how you feel though an you know you are not alone and your in the right place.


Hugs,
Becca
 

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Hi Cassie, I say "yes" in big red letters. Write any symptom that you have had in the past,(physical symptom) and any that you are going thru now, down on a sheet of paper, and then make a copy. At the Rheumy appt., give one to the dr. and tell him that it is to put into your folder. the other one you keep at home and keep updating it. Then at the 2nd Rheumy visit, all you have to hand him is the new ones.Remember that he isn't a mind reader, there is more to lupus than bloods, and he needs you to speek up. be well.
 
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