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I was dx with Lupus in 01. Since then I have seen several different drs in different states, due to moving around for my daughters medical needs. I tested pos for mono back then and had a mini stroke. Later I developed seizures and all the symptoms that come along with lupus except the skin rases and leisions. All this happened after I had a hysterectomy. I was tested for MS last year, because of painful wrists and hands with headaches, leg pains, kidney problems and CNS problems. They didn't believe me that I was dx with Lupus. They did the brain scan and found plaque but never diagnosed me with MS. Said it could take 2-3 yrs before they were sure. Now, I told them I was dx with Lupus, no one listened to me nor did the blood work to check for it. They checked for anemia, lyme and kidney funtions. I was aniemic so I started getting shots. No lyme, but kidney functions were border line. I have had a terrible flare up for the past 2 months now and it is worsening. It has affected not only my kidneys, protein in my urine for over a year now, but my heart as well, I have inflamtion in my heart muscle. along with cog functions and the usual leg, arm, hands, feet and back pain. What should I look for when the dr sees me next week in my blood work? Could I test neg and still have lupus like they dx me in 01? And now that I am back with my original dr taht dx me in 01, I am questioning all the testings because of what other drs have said and done... Today I also developed itching! My legs are itching like crazy after a bout with numbness and prickly tingling in my legs yesterday. I feel it is getting worse and I'm scared I am going to suffer perminent damage if something isn't done soon...