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I can only be myself
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Hey everyone, sorry not been around much...
As most of you know I've had a lot going on lately.

Mum's deteriorated quite a lot in the past month or so, she's now on constant oxygen and probably won't survive much longer than christmas. It's very hard and tiring looking after her, me and dad are trying to work together to keep the house going and give her all the care she needs...my brother's not much help.

On the lupus front; I am flaring rather severely. I'm in so much pain, and feel like i just need to sleep constantly, the doc is leaving me on cellcept for another 3 months even though I feel no effects and just seem to be feeling worse. I'm not sleeping because of the pain and bad stomach cramps during the night generally resulting in a short burst of severe runs, but it's still agony for a couple of hours before the relief. I've had a couple of allergic reactions to random unknown sources. I've finally found an anti-depressant that kinda works without horrid side-effects, so at least that's one good thing. Anyway, I probably wont be around much, but will keep updating and popping in every now and again x
 

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Vikki
I'm so sorry to hear about your mum - my prayers are with you and your family. I was wondering how you were getting on. I also hope you get some relief from the constant lupus flaring. I know how that one feels.

Take care (((((((((((((((((((hugs))))))))))))))))))))))) to you all

Love
Lis
 

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Hi Vikki and (((((((((hugs)))))))))

I too had been wondering how you were getting on. I'm sorry to hear that your Mum is so bad. It being expected doesn't make it any easier on you or your Dad.

It sounds like you're suffering a lot from your lupus and I'm sure the situation with your Mum is contributing greatly to that. I can't give you any advice as at times we just can't heed the advice. All I can do is send masses of hugs and keep you all in my thoughts and prayers.

love and hugs :hug:
Katharine
 

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Hi Vikki,

Thanks for checking in and giving us an update on your situation. Sorry to hear your Mom is so much worse. I am sure your Dad appreciates your support during this stressful time.

Your intestinal cramps and runs could be from the Cell Cept unless you had them before. I hope you get some relief soon.

Take care,
Lazylegs
 

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Sorry to hear about your mum just sending you big hugs and lots of support. Look after yourself as much as you can.:hug:
 

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Vikki,

I am sending big, soft, gentle hugs your way.:hug::hug:
My thoughts and prayers are with you and your family.

Love,
Lyn
 

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(((((((((Vikki)))))))))) so sorry to hear that your Mum is much worse, she is a lovely person and I'm sure she is very proud of you and all you are doing to help your Dad.

Take care sweetie, I will keep you all in my thoughts and prayers.

love
Lily
 

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Dear Vikki

Im very sorry to hear how much your Mum has deteriorated. It must be heartbreaking for you all :sad: You and your Dad can be proud of yourselves that you are doing everything you can to keep things together. I know how hard this must be on you all though.

Much love and strength to all of you through this very painful journey.

Love
Joan:rose:
 

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Hello (((((((((Vikki))))))))))) :hugbetter:

Thank you for updating us on how you are. I'm so sorry to hear your mum is so much worse.... :(

Sending loads and loads of strengthening hugs your way :grouphug2: :grhug:

My thoughts are with you all,

Zoi
 

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Hi Vikki

I just wanted to let you know I am keeping you and your family in my prayers through this difficult time. I know it is so hard to see your mum like that and also take on the extra responsibilities. They are very lucky to have you. Please get some rest and take care of yourself during this difficult time.
 

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Dear Vikki

My heart goes out to you and your family. It is hard enough dealing with the emotional and physical demands of such a sad situation even when we are in good health.
Life is monstrously unfair. Thank goodness for the mercies of anti depressants.

Many caring and strengthening hugs. You will be in my thoughts.

Love
Clare
 
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