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:hello:
Hi,

Trying to get info on Radioactive Iodine Treatment and any side effect Lupus Suffers might have had.

Im have googled it but to no avail so asking Lupus Suffers on this forum for feedback. I have an appointment next week with my surgeon might try to bring that forward tomorrow if i can and i want to be armed with info if he suggests this course of treatment (i had a Total Thyroidectiom 3 wks ago for Follicular Cancer Cells).

Will phone the Lupus Support Group here in Ireland tomorrow but throwing it out to the worldwide web tonight,

All feedback would be good-good and bad side effect please
Jo
 

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Hi Jo,

It has been a long time since I had the treatment, but I do not remember having any side effects from the treatment itself. Shortly after I began to get hypothyroid symptoms which was to be expected. After a few stabs at different dosages of thyroid medication I was fine.

The one thing they didn't tell me beforehand was to limit close exposure to others for a week or so. I had a one year old at the time and was not allowed to hold her. My husband had to sleep in another room. Also nobody was allowed to use my bathroom for the first week so they didn't come in contact with any of my bodily fluids. Check with your doctor to see what precaution they suggest these days.

Take care,
Lazylegs
 

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radioactive treatment

Hi Josephine
yes I had the radioactive thyroid treatment. 17 years ago I had a swollen left neck thyroid nodule; specialist needled it and said all :)okay. 15 years ago in another city, tests by GP said thyroid was under and needled again. Flown to treatment, just drank water with pill, :rolleyes:and flown back. Yes instructions had said avoid contact.

This year I wanted to see endocrinologist, as no checks except blood test were made to see:worried: if under/over or more nodules. GP arranged scan, then more needling as thyroid lobe was enlarged, where with 4 passes no actual diagnosis was made.

I flew south last week (no endocrinologists here). His opinion is I probably don't need the 50mcg minimum thyroxine tablet, so blood test this week, next week half tablet, ring him down south two days after second test, then one week no tablet and ring him, weaning off tablet.

But he said GP has to arrange more fine needling :blush:now to check thyroid nodules. He said I could see him after all that. So after 17 years we'll see.
Hope all works :wink2:well for you.
Marymackay
 
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