[scrapperjen]

I do not have Raynaud's (miracle of miracles....lol), but I do have a question about it. I do know the basics. My son is 9 and has been having some issues over the winter with his toes getting white and, I'm thinking, numb. he says they feel weird. When I lightly touched his big toe, he said he could feel it and when I touched his little toe (the one that was white), he said he couldn't, so that's why I figure he's feeling it as numb. I have seen all 5 of his toes white when they're really cold, and even the big joint of the big toe (the ball of the foot maybe?). He says that they tingle a little bit when they warm up.

My mom asked if he's ever had an opportunity to get frostbite, but I certainly dont' know how that would happen. He's always properly dressed when he's outside. At school they can't go out in the winter if they don't have hat, mittens, snowpants, and boots. Oh, and a winter coat

He has psoriasis on his scalp, so i guess he already has an autoimmune disease, so could this be another? I know AI diseases are rare in males, but...........Just checking for any opinions.

He has to go to the dr. later this month for a refill on his Straterra -- he's ADHD -- so I plan on asking about this. Now that it's warmed up a little bit here, I doubt I'd get lucky enough for this to happen in the dr's office! It NEVER happens that way, does it?:lol:

 

[cath]

HI,

I'm sorry about your worries. Whilst I wouln't like to think you dismissed them because of me (always trust your mother instinct), it sounds like normal cold feet to me, not raynauds. When the blood returns after a raynauds attack it is extremely painful. As an adult, I want to jump up and down and cry, so I doubt a kid would describe it as a bit of tingling.

One way to test it (and this is mean) is to plunge the hands or feet into a bucket filled with water and icecubes. Raunauds usually shows up on cue if it is present. I can trigger it just by washing my hands under the cold water tap within about 15 seconds. Personally I wouldn't do this to your child just out of interest, but if the paediatrician wanted to know for sure, they might do this test.

Of course it is worth mentioning to the doctor. No worry is ever too small to mention when it comes to your child's health.

All the best,

X C X

 

[elisabethm]

Hi i dont know much about raynauds but i do know if it was frostbite my som had it when he was in the army and he could not put his feet on the floor as he was in agony.When he came home from his weekend leave he was crying and i got our own gp out to see him and they did not know what was wrong with him till i said to the third doctor came out to see him i said he had been away for the weekend to do some training and i said could it be frostbite and yes that is what it was so our own doctor phoned the army officer and he was then taken back to the barracks and was in the hospital for over 2weeks on bed rest so i hope your son does not have that best wishes to you and your son elisabeth

 

[BigSis]

Hi there,
I've had Raynauds since teenage years.
i do find it painful when the circulation returns but not excessively.
It is however very obviously there......the completely dead looking hands freak people out. It is massively difficult to do anything when they are numb then with the tingling as feeling returns you don't want to do anything.
Good luck

 

[greenhaggis]

My son who's nearly 3 has suspected Raynaud's Phenomonem due to suffering with white/cold hands/feet that tingle! He always tells me that his feet are dizzy!! Apparently the major pain does not always happen! I can vouch for that as I have Raynauds and don't always get the pain!

He does attend a paediactrict specialist for problems with temp control and heart murmour!

The specialist just keeps a watchfull eye on him, but is also willing to test bloods for auto-immune whenever I feel necessary!

Love Lesley