Raynauds

Raynauds

Thankyou Cad and Clare for your support. I have not been to the doc yet because it just happened. That is why I came here, too find out what too do. Should I call the MD OR the Rumy. I have never been medicated for Raynauds, I did read that certain meds lower your bp and I already have a normal bp of around 90/40. I am going to make an appointment for this symptom, any advice on which medicine concidering my low B/P. As far as the diagnoses I have not been officially diagnosed with anything. The Rumy is still investigating all my blood work. So far this what they found. + ANA, titer is 640, sed rate is 125, pattern is Centromere. Symptoms are, joint pain from back of neck to toes, elbows ache, and ankles, and knees.....no rumatoid arthritis found. Leukaderma on face, red chest, sometimes purple, red streak down the side of my neck that is like sun burn, severe sun poison in the summer. All over chest and arms and back. Now this raynauds, I am wondering what will it take too diagnose me. I feel so sick with no answers. He just keeps saying possible MCTD, which I thought was different diseases not symptoms, he said my pattern says centromere which makes him think scleraderma, and the ana and all the symptoms are making him think Lupus. Isn't MCTD a few diseases, which would mean that I have lupus, and scleraderma??? He said the Raynauds is secondary to whatever is wrong with me. Anyway, my last appt. my sed rate was 125 he just ordered another test to be done, I am already on an antidepressant, I have been dealing with Pysch issues all my life.....This just makes it all the more worse....I just wish I knew what was wrong with me, am I dying??????

Thank you so much....Cad !!!

Thank you for responding, I look for it all day, sorry for the high anxiety. Yes I agree, I need to get a better mD though. She always just says and I will quote her "Deal with it". The rumy see's me every 3 months and just shakes head saying " I think it is MCTD, he was saying Lupus, like I said he saw that my sed rate was 125, I tell him that I am so sick, I told him about what happened to me last march, and he really did not say much. It has only happened once to me. Last March when I said that the raynauds started, I was also in bed for 3 weeks, my bone in the back of my neck was aching, let's say Throbbing, all the way down to my toes, my elbow, my shoulders, my hip, and knees, even my ankles were throbbing. I really think it was what this site calls a Flare up. I know that you can not diagnose me, but what is your opinion? + ana, titer 640, centromere pattern, sed rate so high, and the thing that happened in march, which I think was a flare. Now my fingers are going numb. So you are saying get a good md, to make sure that the rumy I am seeing is taking care of me? And also should I go too the Md or a rumy for my fingers turning white, and going dead. No one has even diagnosed me with Raynauds yet. I am out of work now again, I am an LPN, and know that I am a long way off from disability, but I am having financial difficulty also from not helping my husband work.....I just feel so sick, and don't know what too do next. Thank you for your support, I used to be the Rock in my family, I can help you also, I am just so weak right now, and confused, I usually give support, don't normally need it. I do hope that you are feeling ok, as I am learing that emotionally this I think can kill you.....thanks again, I look forward to hearing from you again....
Connie