Hi
I was wondering if anyone else has this and or if they have found any ways to help.
I have lupus, raynauds and sticky blood. I take aspirin and started plaquenil a week ago. I am flaring at the mo but my major problem is my raynauds or what I assume to be raynauds.
I get the colour changes, mostly white and red, blue/black only occasionally. If I go out in the cold, even though well layered after a while, even though I dont feel cold, I lose all use of one hand. The fingers wont move and are curled, they wont straighten, move etc. I also stumble as I cant walk or move. My brain wont work I cant think or function. It is like my body is shutting down. When I get home the pain is agonising it reduces me to tears, but the loss of function can take days to return. Also I have had to stop driving as I cant feel the pedals and think I am applying pressure but am not. My fingertips have been numb for months causing problems with pin machines and keyboards, writing etc.
I am afraid to go out now! I did mention this at my london bridge appt and he did say how cold my hands and feet were and how I have blotchy rashes showing poor blood flow, but he has written to gp saying mild raynauds.? Does this mean what I am experiencing is something else or am I missing something? This winter I have had chilblains for the first time. I have a gp appt next week to discuss this(raynauds), as it is severly impacting my life.
Sorry for long post, also to say dont smoke, have decaf coffee, and have tried websites on raynauds. Also searched the site for old threads but couldnt find one where someone had similar to me.
Would be grateful for any help.
Deb
I was wondering if anyone else has this and or if they have found any ways to help.
I have lupus, raynauds and sticky blood. I take aspirin and started plaquenil a week ago. I am flaring at the mo but my major problem is my raynauds or what I assume to be raynauds.
I get the colour changes, mostly white and red, blue/black only occasionally. If I go out in the cold, even though well layered after a while, even though I dont feel cold, I lose all use of one hand. The fingers wont move and are curled, they wont straighten, move etc. I also stumble as I cant walk or move. My brain wont work I cant think or function. It is like my body is shutting down. When I get home the pain is agonising it reduces me to tears, but the loss of function can take days to return. Also I have had to stop driving as I cant feel the pedals and think I am applying pressure but am not. My fingertips have been numb for months causing problems with pin machines and keyboards, writing etc.
I am afraid to go out now! I did mention this at my london bridge appt and he did say how cold my hands and feet were and how I have blotchy rashes showing poor blood flow, but he has written to gp saying mild raynauds.? Does this mean what I am experiencing is something else or am I missing something? This winter I have had chilblains for the first time. I have a gp appt next week to discuss this(raynauds), as it is severly impacting my life.
Sorry for long post, also to say dont smoke, have decaf coffee, and have tried websites on raynauds. Also searched the site for old threads but couldnt find one where someone had similar to me.
Would be grateful for any help.
Deb