Hi,
I was told two years ago whilst traveling in Australia that I had S.L.E I was refered to a rheumatologist but couldn't afford to make the appointment, it was not covered by medicare and 80 bucks a visit was beyond my means. So my GP told me to see a doctor as soon as i got back to England, which I did. The healthcare system over here is pretty dismal which i hadnt noticed until now when i really need it. Ive been bounced around from rheumatologists to dermatologists and both agreed I should start hydrochloroquin, The nurse at my surgery was amazing and put me at total ease about starting the drug, she ran liver and kidney function tests and a full blood count to check i was able to start the drug. All came back fine and my nurse had to make me an appointment with a GP as she was unable to prescribe hydrochloroquin. So I was so excited about starting treament after suffering for so long and was feeling very postive only to be shot down by the GP who didnt think it necessary as i wasnt suffering a flare up and she couldnt see anything wrong with my skin. She said that the drug was too aggresive to start without long consideration and that its very damaging. So do I not have S.L.E? do I not need treament? im begining to feel like a total hypochondriac. I hate having blood tests as i usually pass out and im finding it so hard not to give up and just learn to put up with my symptoms.
Sorry that this is so long, its just been a long time that ive had to keep things bottled up. I dont want to bore or worry my family with all this.
Thank you
I was told two years ago whilst traveling in Australia that I had S.L.E I was refered to a rheumatologist but couldn't afford to make the appointment, it was not covered by medicare and 80 bucks a visit was beyond my means. So my GP told me to see a doctor as soon as i got back to England, which I did. The healthcare system over here is pretty dismal which i hadnt noticed until now when i really need it. Ive been bounced around from rheumatologists to dermatologists and both agreed I should start hydrochloroquin, The nurse at my surgery was amazing and put me at total ease about starting the drug, she ran liver and kidney function tests and a full blood count to check i was able to start the drug. All came back fine and my nurse had to make me an appointment with a GP as she was unable to prescribe hydrochloroquin. So I was so excited about starting treament after suffering for so long and was feeling very postive only to be shot down by the GP who didnt think it necessary as i wasnt suffering a flare up and she couldnt see anything wrong with my skin. She said that the drug was too aggresive to start without long consideration and that its very damaging. So do I not have S.L.E? do I not need treament? im begining to feel like a total hypochondriac. I hate having blood tests as i usually pass out and im finding it so hard not to give up and just learn to put up with my symptoms.
Sorry that this is so long, its just been a long time that ive had to keep things bottled up. I dont want to bore or worry my family with all this.
Thank you