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Hi.

After my mixed up appt a couple of weeks ago it is my proper Rheumy appt on Monday afternoon. I'll get my latest batch of blood results and bone scan results. To be honest I wasn't nervous till today - but now its near I'm quaking. My hubby is working away for nearly 3 weeks so he won't be back till August and my little girl's school hols start next week and I'm already so tired I just want to go to bed, but I must do a couple of funding applications or I'll have no work in the Autumn and winter this year.

I'm scared he'll say bloods have returned to normal so go away and don't come back - because there has to be something wrong for me to feel like this so much of the time. If my bloods are normal he'll just say its coz I'm depressed. Its not that I want anything like lupus, but that I want to feel better and a dx means more appropriate treatment so feeling better is more likely.:worried:
 

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Hey there :)

I know exactly what you mean about being scared your bloods are normal! It seems odd to say that but when you've been brushed off one time too many, you get to that stage. I am one of those people whose bloods never really showed up a lot and my rheumy used to be very bloods oriented. I suppose she still is to an extent but I'd like to think she has learned a bit from the experience and she does now listen to how I'm feeling and not my bloodwork.

I never had positive ANA and it was only after diagnosis through skin biospy that certain things did show up in my bloods but they were very specialised tests that she had to ask for.

I can't really stop you worrying. I think that worry is kind of natural but I do want to say that if you don't get answers then it is not a case of give up, it's a case of keep on going.

Sorry I can't help more, with time you should worry less. It was only recently that I stopped worrying about my rheumy suddenly turning around and telling me nothing was wrong with me. I think that had a lot to do with my major denial problem though :lol: I kind of refused to believe I was ill myself!!

Katharine
 

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I can understand your thoughts on blood tests too. Mine are remarkably normal most of the time too (except very high ANA); and many of my doctors would dismiss my symptoms --- even WITH a lupus diagnosis --- because the dang sed rate would always come back as normal!

Good luck on Monday, and I hope something gets figured out for you. Please let us know how it goes!
 
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