[jaki]

hi guys
i am in an awful lot of pain last frw days and today it is unbearable my right knee is like a football so swollen and pain is driving me crazy my left elbow is the same.i am in bed waiting for my 7 year old daughter to wake up thank god there is no school today maybe she will lay in bed with me and watch t.v.i cannot get out of bed i have taken all i can in the pain department.my doctor says all i can do is rest but that does'nt help when i have a little girl to take off.
i am sorry for for complaining but i know you guys will understand.hope you have a good day
jackie

 

[jaki]

thanks for the advice guys.i was in so much pain i just did'nt know what to.i only lasted another hour after posting on wed and i could'nt last any longer i called my sister and she took ciara i had really high temp and my sister called my husband john to come home.he was cross that i had'nt called earlier i have lupus 7 years now and i have cried with pain a few times but on wednesday i was screaming and i was very scared john called my rheumy and she wanted to admit me but her hospital is 100 miles away there is no rheumy where i live she called my gp and told him what to do.he came to the house and gave me a shot of morphine he waited and had a cuppa with john and nothing changed so he gave me 100mg of pethadine (i've never had that before).i eventually fell asleep Thank God.Now i am still in bed on 100mg of deltacortril and oxycontin and something to help me sleep.RELIEF AT LAST i still can't walk but hopefully in a few days things will improve.
I don't know if any of you feel like this but when i am sick i don't want to call anyone i feel like i am putting people out.My family try to understand but they really don't get it.I am so glad i have you guys i always feel alone and isolated and at the moment i am really down.I pray for a cure for all of us.thanks again guys.sorry if i went on a bit.

 

[jaki]

hi joan
i'm on CELLCEPT,PLAQUENIL,LYRICA,AMITRIPTYLINE,DELTACORTRIL,LUSTRAL,DIOVAN,PLAVIX,
and pain relief when needed.I used to get great relief from AULIN but now it's off the market.I have had a great year last year flares were small and passed very quickly.I was very seldom confined to bed.This time i think lupus wants to remind me what it is all about.My rheumy said because i am on the highest dose of CELLCEPT the next step is going to HAROLDS CROSS for aggressive chemotherapy.Have you heard of this Joan?I have been on these meds for 3 years now doses adjusted now and then before that i had METHOTREXATE i did'nt like that at all i felt really ill with it and lost my hair.Do you know anything about what they do at Harolds Cross for lupus?I was in so much pain i did'nt take in what rheumy told me but i'll see her again soon so i can get all the facts.I have to go to TRALEE for treatment Joan there is no-one in Clare or Limerick for me.Thanks for you support Joan it really means alot. I don't know how to send you a hug but i am wishing you lots.

 

[jaki]

hi Ceecee
it's horrible what you are going through at your age.Hopefully both of us will be up dancing soon i love to dance.what meds are you on?You take care and hopefully we can talk soon.