Joined
·
64 Posts
Hi all...it's been awhile since I have been here....I keep leaving but then....lol...I keep coming back as so many things that are going on seem so much like me...
We are still searching for a diagnosis which I come to believe will never be achieved. My question is how many years can it take for your ANA to change? Every test I have taken so far in the past 3 years has been negative.
However symptoms continue to keep creaping up that no one can figure out. The worst one so far was the movement disorder. My arms and legs became very hard to move. My muscle tone was awful. I have regained some of it back but not all. The pheriphiarl neuropathy seems to be spreading from my legs to including my arms now
I have severe pelvic pain that no one can find the cause of. The say it is not interstational cyctis because the inside of my bladder looks fine, I get more uti's then normal but even when not having a uti the pain is so horrible I can't stand it.
Just looking for some words of encouragment.
Marti
We are still searching for a diagnosis which I come to believe will never be achieved. My question is how many years can it take for your ANA to change? Every test I have taken so far in the past 3 years has been negative.
However symptoms continue to keep creaping up that no one can figure out. The worst one so far was the movement disorder. My arms and legs became very hard to move. My muscle tone was awful. I have regained some of it back but not all. The pheriphiarl neuropathy seems to be spreading from my legs to including my arms now
I have severe pelvic pain that no one can find the cause of. The say it is not interstational cyctis because the inside of my bladder looks fine, I get more uti's then normal but even when not having a uti the pain is so horrible I can't stand it.
Just looking for some words of encouragment.
Marti