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For OVER a month now, I have been having high fevers that sometimes go all the way up to 104. My rhuematologist assumed it was a lupus flare and upped my prednisone twice, but the fevers kept coming back. Basically I am pretty much always running a fever now, even though it may be 99%. I would wake up with horrible night sweats and couldn't get warm in the morning. I would sit in the bathroom under the window and try to warm up. My rhuemie finally admitted me to the hospital and put me on a huge dosage of pred which did nothing for the fevers. I was in the hospital for a week getting every infectious disease test under the sun because that's what they were concerned about with the fevers that I had an infection. They found nothing in any of the tests. Meanwhile my white blood cell count dropped, went back up a tad and then dropped down again to a pretty low level. I think that's the main concern at this point--my white blood count. I had extra protein in the urine and a swollen liver and spleen as well, but no organ damage. After four days of being out of the hospital the fevers haven't abated. I thought they had but got extremely upset and discouraged when I had one of 103.5 this morning. It went down very quickly but fevers this high scare me. I am an extremely anxious person to begin with so this lupus is very hard to deal with. I went to see the rhuemie today after being out of the hospital for four days so basically they can do a white blood cell count and see what our treatment options are. Cellcept was mentioned and maybe a couple of other meds. I'm having serious brain fog so I tend to forget things people tell me. I'm not sleeping much at night because of the predisone and high fevers.
I know many of you have been through your own lupus crises so maybe you have some words of hope or encouragement. I'm really trying to pray a lot and develop a closer relationship with God. I did have another very scary time in the hospital a couple of years ago with my pericarditis and I got through that, but the depression lasted for months. When the doctors act baffled though, that scares me.
Any words of hope, encouragement and even me just writing out these feelings helps.
I know many of you have been through your own lupus crises so maybe you have some words of hope or encouragement. I'm really trying to pray a lot and develop a closer relationship with God. I did have another very scary time in the hospital a couple of years ago with my pericarditis and I got through that, but the depression lasted for months. When the doctors act baffled though, that scares me.
Any words of hope, encouragement and even me just writing out these feelings helps.