[Karly1964]

I ended up in the emergency room on Sept. 5th with chest pain, difficulty breathing, a terrible honking sound whenever I breathed out, and a deep cough that sounded like croup/stryder. I spent the night just in observation, with chest monitors on, walking up and down the hallway on the 6th, and eventually everything checked out, chest x-rays, throat x-rays and blood work. I was ready to go home but worried about the chest pain...anxiety didn't help at all of course and the fact I never got the majority of my medications while I was in there, they were super slow and sent for things but never when I was supposed to get them. I ended up going over my list at home and trying to get everything I needed for that day. I hope if I have to go back there then they will have time and staff enough to give me everything I need. I am supposed to see my regular physician in a week or so, my rheumatologist in a week or so. I was definately ready to go home because I was so hot in the room and frustrated at not getting my meds, and I hadn't had an ativan in at least twelve hours, I am used to taking them 4 everyday.Makes me very crabby and anxious beyond anxious. Hopefully I won't be back there anytime soon, or be admitted to the other hospital where my rheumatologist admits patients.
Karla, tired but better:wink2:

 

[Lupusdude]

Hi Karly

Karly,

Glad to hear you are out of the hospital and doing better. I know how hard it is to get your meds at the times you are used to. I usually take a stash with me and just take them when I need to. :lol: Btw, don't take my advice unless you want some nitpicky nurse to yell at you. Good luck!

Lupusdude

 

[cemc]

Lupusdude, I loved your comment about taking a stash into hospital with you. After my last hospital admission when I frequently got my muscle spasm meds an hour or two late (resulting in severe spasms that were quite unnecessary) I decided that if ever I went in again, I'd have a secret stash too - probably just enough to be able to take the dose when I needed it, then accept the dose given by nurses to hide away until the next time. I'd also make sure that just before admission I'd take everything I needed - I've now had three occasions where I've had to wait up to 6 hours for meds that I have taken in with me (with name and dose on the box) just because the hospital doc hadn't had time to get it written it up.

 

[LolaLola]

Hello Karly, What a bad experience. I am afraid I also take a secret stash, although if I go into St. Thomas' they are willing to let me handle my own meds.
Feel Better Soon,
x Lola

 

[Lupusdude]

Secret Stash

Hi,

Glad to hear I'm not the only rebel in these posts. Like the saying goes..."God helps those that help themselves."

 

[halfpintfl]

Hi Karly, Congrad's on being out of that hospital. I absoutly hate hospitals.
Anyway, I just wanted to say that I have done the same as you, I have
taken in my secret stash also. Well, I guess that our secret is out now.
get better soon. smile.

 

[KarolH]

Hi Karly,

I think we all take the secret stash in with us when we are admitted.:rotfl::rotfl::rotfl:

I am glad your doing better and hope you continue to improve.:wink2:

 

[Raglet]

Hi Karly

sounds like you have learnt the hard way about hospitals and medication. I never go anywhere near a hospital without taking ALL my medication, and i insist on self medicating the whole time I am there. It is the only way I get the right medication at the right time. I just have one of those boxes I make up for the entire week, so I just grab that and I am good to go. I once waited for 4 days for a hospital to get me a very common anti seizure medication for my epilepsy from the pharmacy that was two floors below. In the end the only reason they got it was because I said I was going to call a taxi and go home and pick mine up from home, and seeing I was on a heparin pump for blood clots at the time they knew they would get seriously kicked in the butt if they let that happen.

I hate hospitals and have a long history of staying out of them as much as possible. Glad to hear that you have escaped and are now at home.

hope you feel better very soon

raglet

 

[helloos]

Glad you are home and feeling better.

I never really thought of that before. But I guess you are right, you should just take all your meds with you.