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Discussion Starter · #1 ·
Hi all! I'm hoping someone here can clear something up for me (no pun intended). I get a bright red, itchy rash anywhere I touch or feel cold. Since the skin doesn't turn white or blue, I'm not sure it's Raynaud's. If I stop touching the cold object or get warm, the redness and itching stops within one-half hour. Does this happen to any of you with confirmed Raynaud's along with your lupus, or do you always get that blue/white blanching of your skin? I've looked up my symptoms and found something called autoimmune urticaria, but I'm not sure if that's it either. Any thoughts? Thanks for your help.
 

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Hi Jesse,

My Raynauds does not react like that at all. It's not a rash and it's not itchy. I get the 3 colour changes mostly these days (there was a time it was only 2 - red and white) and you can see the white (lack of blood) at the end of my fingertips. I don't need to touch something cold for it to come on either and it can last anywhere from hours to days.

Hope this helps,

love
Lily
 

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I have had Raynaud's for ten years and I always go through the red, white and blue stage. Not always in that order. Sometimes blue, white then red. I can only speak for myself, but it may be different for others. Good luck to you.
Mary Ann
 

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Hi
I too have had Raynaud's for a very long time.
Usually blue/white and numb then red and painful/tingling.
No changes to the actual skin.
I have had very itchy red bumpy rashes between my fingers before but not related to anything in particular.
 

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I have also had Raynauds for what seems like forever!! yes i do get the red itchy-ness and my fingers and toes swell-it's usually the warning of a chillblain to come!!
Warming Hugs:)
Rachel
 

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Discussion Starter · #6 ·
OK, this is the first time I've heard of anyone with Raynaud's also having the redness, but except for Rachel, my symptoms don't seem to be like the rest of yours. By the way, what is chillblain?

This is one of the few places where I can communicate with people who are already dealing with similar issues. There's so much value in being able to get information from those who really know what's going on and can speak from experience. Thanks guys!
 

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Hi Jesse,

It sounds a bit like it is cold urticaria - ie getting cold is triggering the skin in that area to release histamine, hence the redness and itching. I get this from cold too (or at least used to when I used to go into the cold:wink2:), expecially on the front of my thighs from running in bare legs in the winter months.

http://en.wikipedia.org/wiki/Cold_urticaria

Ring any bells?

You should let your rheumy know about it next appointment.

X C X
 

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Discussion Starter · #9 ·
Cath, I get it on the front of my thighs too from the cold jeans material touching my skin; handling bags of frozen food will trigger on my hands, etc. It does sound like cold urticaria in some respects and/or chronic autoimmune urticaria, but since the nurse had thought it was Raynaud's I wanted to hear how it compares with people who really have it. Thanks for that link.

Chilblain looks awfully painful! I don't get swelling like that so I guess it's not the same. Thanks Rachel, for the explaination. I hope you don't have to deal with that very often....ouch!
 
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