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Discussion Starter · #1 ·
Hi all I have recently been diagnosed with this and wanted some advice about what to expect from this condition in the future. The Dr I saw at the hospital said that the damage is irreversible. I have been having yearly eye tests so not sure if this should of been picked up before at the opticians? I have got a telephone consultation on Fri with my rheumy so will also discuss my options with her. Thanks Evie
 

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Good luck with your consultation. When I first noticed a problem it was early on and some of the symptoms did improve. My doctor had me discontinue Hydroxychloroquine but I do know someone else that just went to a lower dosage and has done well so far.

Take care,
Lazylegs
 

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Discussion Starter · #3 ·
Thanks for the reply. My consultation went ok my rheumy decided that it was best for me to stop taking hydroxycholroquine and to see if my eyes improve. So just a case of wait and see, hopefully things will improve and my uctd doesn't get worse.Evie
 
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