[Rhi]

Hi all, I had my 1st rheumy appt yesterday and I'm soooo relieved. I'm officially diagnosed with APS!!! She said that the joint pain/inflammation/redness is very possible caused through this (I never knew this, so confident that I don't have lupus now) but I had more bloods done to check for lupus just in case. She gave me a thorough examination, fair play, and apparently I also have hypermobile joints which could ALSO be causing the pain. 'Luckily' I still have a very slight livedo rash on the back of my hands so she could see what I was talking about, apparently it's very specific to APS and lupus? As I am now 25 weeks pregnant I've had no joint pain for 17 weeks, so I have another appointment after baby is born as I'll probably flare up again then. I had 6 vials of blood taken for liver/kidney profile, FBC ANA and others so just gotta wait for them to come back now. Does anyone else 'only' have APS and get joint pain with it? I've tried to google it but can't find much about it. Also, as I'm on clexane and aspirin now, does that mean that I will need long-term anticoagulants after the baby is born with this diagnosis? Many thanks xx
Rhi xx

 

[Rhi]

Thanks for your reply x I'm sorry for your sister's loss, was APS given as the cause? They said it could be the reason I lost my little boy and the 3 subsequent miscarriages. Does your sis get joint pain too? I will definitely ask the doc about treatment after the birth and beyond, should I ask the rheumy or GP though?
I feel so guilty for being relieved that the rheumy is confident that I only have APS and not lupus, I know it has it's own complications in itself but I would rather that than lupus if that makes sense, wouldn't wish any of it on anyone. Hope I haven't offended anyone and that I'm making sense, my head is really foggy at the mo so I apologise if my words haven't come out right x
Thanks again x
Rhi xx