My Rheume has dxd me with UCTD inc. Livedo Recticularis, my Dermie says Lupus and Rheynalds .. Rheume today is going to Refer me to another "specialised" Rheume for a second oppinion due to my condition/s becoming worse rather than better ... while I was with him today, I brought up my concerns for my Son as to me he seems to be showing similar symptoms to myself (in a much smaller degree fortunatly) they include the livedo recticularis, what look to me to be connective tissue sores very similar to what I get also, and there are days he complains of pins and needles or leg cramps without any apparent cause leading to it. my Rheume sees my consern & is inclined to believe my Son's health needs investigating further ..
I'm looking for any tips that can help me hold myself together and also not scare my Son while we go through this process ... and if he does have auto immune/connective tissue disorders also, how do we manage without him worrying he'll be as sick as me ..
The only thing I"ve decided yet, is to give myself and my partner the weekend to face the reality that there may really be something to deal with here (while my Son's asleep) so I can hold myself together when I take him to the Dr for a referal next week, unfortunatly my Rheume doesn't see kids
even if my Son is sick, I don't want him "feeling" sick for going through this process etc. He's 10 by the way
I'm looking for any tips that can help me hold myself together and also not scare my Son while we go through this process ... and if he does have auto immune/connective tissue disorders also, how do we manage without him worrying he'll be as sick as me ..
The only thing I"ve decided yet, is to give myself and my partner the weekend to face the reality that there may really be something to deal with here (while my Son's asleep) so I can hold myself together when I take him to the Dr for a referal next week, unfortunatly my Rheume doesn't see kids
even if my Son is sick, I don't want him "feeling" sick for going through this process etc. He's 10 by the way