The Lupus Forum banner
1 - 3 of 3 Posts

· Registered
Joined
·
133 Posts
Discussion Starter · #1 ·
Hi everyone

Just wanted to let you know that after moving to Kent 7 months ago I have finally got an appointment with a new rheumy.

I just hope I haven't got to start all over again and waste another 7 years to "almost" get a diagnosis.

(My last rheumy at Worcester wrote "Lupus??" in my notes and wanted to revisit bloodwork after I had come off prednisilone.)

Well, I've been off the pred for two months so any effect on my blood may well have worn off. By the time I get to see him (25th) it will be three months off so something might show :rolleyes: .

Starting to have a flare now, very achy, legs feel like lead, can hardly see, butterfly is coming along nicely (will take photo of it in case it goes down for the appt), phlebitis in leg, soooooo tired, don't want to eat (not even chocolate), livedo on hands and arms permanent, lower legs feeling as if I have sunburn. Won't be long before I start the muscle spasms.

I've just got over a very extended cold (seriously painful throat, nose like a tap and headaches). Could this have flared everything up?

I will take the advice that many of you give and write everything down for the rheumy. Should I contact my old department and get my notes sent down or do you think it is better if the new one starts with a clean slate?

Sorry to have such a long post but feeling grottier by the minute. (and I'm typing this at work when I should be doing "important stuff" :lol: )

Hope you are all doing well today.

Love Judi xx

P.S. Started taking Ramipril for blood pressure since Saturday. Do you think this is a coincidence or the med kicking in and causing the flare?
 

· Registered
Joined
·
133 Posts
Discussion Starter · #6 ·
Thanks all for you replies.

Sorry I have not replied sooner but I managed to slice a piece off my middle finger of my left hand (my good one) on Sunday and haven't been able to type until today.

Just to add a couple more sx to my stack, I think I have another kidney infection on the brew and I have had horrendous ribcage pain for the last 36 hours. I'm due to see the pratice nurse again tomorrow (for my finger) I'll run by my sx to see if I can get to see the GP.

Hope all of you are faring well today.

Love Judi
 

· Registered
Joined
·
133 Posts
Discussion Starter · #8 ·
Hi Lesley

Thanks for your reply. The finger is not too painful today as I can type! (not using it though).

My new GP arranged the consult. She had got details from my old GP in Worcestershire and copies of letters from WRH rheumy so I think she would have sent details along to Kent and Sussex rheumy.

I am due blood presure and dressing change tomorrow and I will take a sample along to the surgery when I go. I don't feel too bad but was feverish and shivery last night and went to bed at 9:15. Hubby at home today so as I can't drive at the moment (finger) I'm stuck at home with him "working" :lol: . Trouble is, every time I go to the computer I end up on here!!!!!!

Love Judi xx
 
1 - 3 of 3 Posts
This is an older thread, you may not receive a response, and could be reviving an old thread. Please consider creating a new thread.
Top