Hey guys hope you are all well,
had my rheumy appointment today, alot of you know I was waiting for it and have been quite poorly. So heres whats happening:
1.Low white cell count -thinks its SLE (says im not on high enough doses of meds to cause this) and I have to have an HIV test too...even though I'm pretty sure I'm not at risk its still scary that he thinks it needs to be done! On blood form he has written "Refractory Lupus, ANA +, exclude HIV".
2.Should be getting Rituximab in the next 8 weeks (PCT are being begged) but he said he hasn't been turned down ever.
3.Having CK blood test ?Myositis - due to very painful muscles. He said if that comes back negative then I'll have to have muscle biopsy.
4. Continue meds that im on...no changes..continue in this ****..seeing him in a month.
5. Full blood work up as per usual.
I just feel awful...am worried about everything, am going to australia in 63 days! And now I have to do my methotrexate injection when today is the first day in months that I have felt relatively human.
:cry3::wall::sadwalk:
Love to you all xxxxxxxxx
had my rheumy appointment today, alot of you know I was waiting for it and have been quite poorly. So heres whats happening:
1.Low white cell count -thinks its SLE (says im not on high enough doses of meds to cause this) and I have to have an HIV test too...even though I'm pretty sure I'm not at risk its still scary that he thinks it needs to be done! On blood form he has written "Refractory Lupus, ANA +, exclude HIV".
2.Should be getting Rituximab in the next 8 weeks (PCT are being begged) but he said he hasn't been turned down ever.
3.Having CK blood test ?Myositis - due to very painful muscles. He said if that comes back negative then I'll have to have muscle biopsy.
4. Continue meds that im on...no changes..continue in this ****..seeing him in a month.
5. Full blood work up as per usual.
I just feel awful...am worried about everything, am going to australia in 63 days! And now I have to do my methotrexate injection when today is the first day in months that I have felt relatively human.
:cry3::wall::sadwalk:
Love to you all xxxxxxxxx