Hello everyone
I thought it best I start a new thread to update you on how the appointment went to prevent this getting lost in my last thread?
My rheumy had a look at my DD blood tests results,he thought they were mine at first
& then explained that she IS carrying the same autoantibody gene as me which means she could develop lupus but theres also the possibility she might not,it's something that you can't predict.....he said that my children were a high risk for this anyway due to me having lupus & my sister having APS.
He said that it's good sign that the other results were negative however he is concerned about the symptoms she's having so it would be wise for her to be referred to a rheumatologist at the childrens hospital :worried: apparently he can't see her personally because she is under 16.
I will have to try not to worry for now & just wait for her appointment...I am usually optimistic..but I can't help feeling devasted & negative at the moment :sad:
knowing that my children were ok is the main reason I have stayed sane! now I need to figure out what exactly I am going to tell her?.....not at the moment though as I am too fragile & will get upset,I can't do that to her!
oh & on top of that..I was introduced to a new rheumy who examined my hands etc & he told me that due to my deformaties I have an RA overlap
with the lupus..I explained that I had been treated for it in the past but then they decided I didn't have it?.....but he was adamant that I do have an RA overlap because he has never seen my deformities on a patient with 'just' lupus.
I want to thank you all for your kind support through this..it means a lot to me...I will update after my daughters appointment.please keep your fingers crossed for us
:grhug: luv karen x :love2:
I thought it best I start a new thread to update you on how the appointment went to prevent this getting lost in my last thread?
My rheumy had a look at my DD blood tests results,he thought they were mine at first
He said that it's good sign that the other results were negative however he is concerned about the symptoms she's having so it would be wise for her to be referred to a rheumatologist at the childrens hospital :worried: apparently he can't see her personally because she is under 16.
I will have to try not to worry for now & just wait for her appointment...I am usually optimistic..but I can't help feeling devasted & negative at the moment :sad:
knowing that my children were ok is the main reason I have stayed sane! now I need to figure out what exactly I am going to tell her?.....not at the moment though as I am too fragile & will get upset,I can't do that to her!
oh & on top of that..I was introduced to a new rheumy who examined my hands etc & he told me that due to my deformaties I have an RA overlap
I want to thank you all for your kind support through this..it means a lot to me...I will update after my daughters appointment.please keep your fingers crossed for us
:grhug: luv karen x :love2: