[Shadow girl]

I've got an appt with Rheumy tomorrow. Its a year since my last one. I'm feeling really nervous because I don't feel too bad at the moment (how ironic is that? Normally I long to feel ok). I'm just scared all tests will come back normal and he'll take me off plaquenil and send me back to the GP. I've got to the point where I would prefer some sort of name for whats happening so I can know everything is down to that and not just because I'm a stupid, unfit, fat, pathetic cow.

I've written a list in case I get nervous and forget things I sould tell him but is there anything else I should do to get the best from the appt? I don't want to feel like a hyperchondriac looser.

 

[doris999]

Hi,
Is'nt that the way, going to see the DR & we feel great......AHHHHH.
You've done the right thing writing it all down, & write a list of questions as you think about them & hand that over as well.
Hey Hun, don't put yourself down, the plaquenil does that to your body, not you. As for being unfit, we can't help that either we never have the energy to do housework let alone exercise, we do what we can when we feel we have some energy, be it only cleaning the loo.
Try and rest & relax, you'll proberly have a good appt tomorrow, just don't hold back tell him everything.
Good luck, let us know how you get on.
Hugs,
Sandra.

 

[pamela b]

I just wanted to say good luck and try not to worry.
It is ironic that we always seem not to be at rock bottom when we go but they will see beyond that.
I am sure you want a name but what you want in reality as well do is to be well
When I used to go to the specialist about my thryoid I was always terrified he would take away my medication and I would get to feel awful again. I plucked up the courage to tell him once and he smiled and said it was natural.

I took a list of my symptoms, even those I didnt think relevent. I took a list of questions and it worked well
You know your body, you know how you feel, dont worry and the best of luck I do hope that you get an answer
Pam

 

[lazylegs]

I look at your feeling well as a positive sign. Obviously the Plaquenil is doing some good and therefore it would be prudent for you to stay on it :fingers:

The rheumy may bump you back to the GP for monitoring purposes and any other health issues. However I would think you would probably have a regular yearly review with the rheumy. In the event your conditions worsens you can always contact the office by phone.

Good luck with your appointment. Let us know how it goes.

Take care,
Lazylegs

 

[Sideways Sally]

That post could have been written by me!

I worried thats the Rhuemy might take me off Plaquenil, she was so happy to see the improvement 16 weeks of Plaq had made, she said it made it very clear to her that I needed it. My ANA test that week had come back negative and I was kept on it! (it has since been positive again )

I have to keep reminding myself I'm not a fat, lazy slug too . . . .I hope that oneday I can get back into those old jeans in the cupboard

 

[lin]

hope your apiontment goes well for oyu, i think its good your feeling okish, don't worry about it, shows your on the right med for oyu, and fingers crossed may long it contiue for you,

Please let us know how it goes all the best Lin, and dont panic
you will be fine, but good idea to write anything down you may forget, xx

 

[Katharine]

Hello

I don't really have much to say/recommend other than what's been said but just wanted to wish you luck.

Let us know how you got on :hug:

Katharine

 

[Shadow girl]

Hi all. Thanks for all the support. I think the appt went very well. I didn't need to use my list. I had x rays & ultra sound, dry eye test (which was fine) and a repeat of blood tests.

He says there is def something autoimmune going on, but very mild. Nothing he is able to put a fixed name to. I am to see him again in 6 months and in the mean time he has reffed me to podiatrist re my ankle and dietician to help me lose more weight. I wsa only .3 of a kg less than last time I saw him. I didn't tell him I'd gained and lost 2 stone inbetween He has suggested I reduce plaquenil to 200mg a day and if inflammation gets bad I can always have an injection, and he'd be happy to see in a flare up as it'd help clarify whats going on.

Thanks again.

Wendy

 

[lin]

Wendy so glad you had a good apointment, at least they are keeping an eye on you,

take care Lin xx

 

[keebler]

Hi Wendy,

I am glad your appointment went well.

The only thing I can add is, take picture of rashes, write down when they appeared and when they are gone. Take those pictures with you at the next appointment.

Good Luck.:luck:
Lyn

 

[Shadow girl]

Thanks Keebler. I will do that.

Wendy

 

[Douglas]

Everyone else seems to have hit things you should do but, because it is a rheumy you are seeing, and some of those can be appalling, I strongly recommend that you NOT take any deadly weapons with you lest you be tempted to use them.
Good luck!
Douglas+

 

[Lily]

Hi Wendy,

That sounds like a pretty good appointment :thumbs: I'm with the other on taking pics of anything out of the ordinary that might help him come to a better understanding of just what goes on in between appts. Obviously you can't take a pic of all symptoms, so just keep a bit of a diary

Haha Douglas :hehe:

love
Lily