Hey guys and girls, hope i find you all well and truely stuffed with pancakes..mmm!!
I thought I would update you on my rheumy appointment as you have all been giving me help and advice recently.
Well he was lovely as per usual. He had the results from my 24 hour ECG and said there was something wrong..some kind of tachycardia thing I can't really remember, but he is referring me to a cardiologist. I'm sure its nothing to worry about, although my heart rate was 128 in clinic today and bp 97/148..bit high
He has also taken me off of azathioprine(Imuran) as we decided it wasn't working and he has put me back on methotrexate (which i stopped due to nausea/vomitting/headaches/crazy low wcc) but I am injecting myself this time rather than tablets...so am seeing the rheum nurse soon so she can teach me this art! Means definately no babies for me for a good while
He also said that he feels my SLE is resistant to alot of meds and he NEEDS to get me off steroids, so he recons he has a pretty good case for getting me Rituximab-which he has had a lot of success with and seems to love at the moment..so we'll see.
He also asked if I could come and find him if i had that purpura type rash again as he wants to biopsy it ?
I told him about my tingly/burning fingers and hands and he pushed on my (very painful) wrists a bit but left it at that so obviously not much concern!
So yeah, thats it. Although now i have a really swollen ankle bone it feels very fluid filled underneath it..how odd? its itchy and hot too but i cant see or feel any bite so can't be that (plus its been covered in socks and boots all day) lol...why do these things always happen 10 minutes after you leave the rheumy's office?!
Love to all
Michele
xxxxxxx
I thought I would update you on my rheumy appointment as you have all been giving me help and advice recently.
Well he was lovely as per usual. He had the results from my 24 hour ECG and said there was something wrong..some kind of tachycardia thing I can't really remember, but he is referring me to a cardiologist. I'm sure its nothing to worry about, although my heart rate was 128 in clinic today and bp 97/148..bit high
He has also taken me off of azathioprine(Imuran) as we decided it wasn't working and he has put me back on methotrexate (which i stopped due to nausea/vomitting/headaches/crazy low wcc) but I am injecting myself this time rather than tablets...so am seeing the rheum nurse soon so she can teach me this art! Means definately no babies for me for a good while
He also said that he feels my SLE is resistant to alot of meds and he NEEDS to get me off steroids, so he recons he has a pretty good case for getting me Rituximab-which he has had a lot of success with and seems to love at the moment..so we'll see.
He also asked if I could come and find him if i had that purpura type rash again as he wants to biopsy it ?
I told him about my tingly/burning fingers and hands and he pushed on my (very painful) wrists a bit but left it at that so obviously not much concern!
So yeah, thats it. Although now i have a really swollen ankle bone it feels very fluid filled underneath it..how odd? its itchy and hot too but i cant see or feel any bite so can't be that (plus its been covered in socks and boots all day) lol...why do these things always happen 10 minutes after you leave the rheumy's office?!
Love to all
Michele
xxxxxxx