[mindyandy420]

Can anybody tell or direct me to a website that shows where they are doing clinical trials for Rixutan on NPSLE? Or any website where they are doing trials for NPSLE. I went to clinicaltrials.gov but I dont understand which lupus they are testing and what it all means. From what I have read Rixutan has benefited when everything else has failed.

Is there anybody here in a clinical trial that has NPSLE?

Thanks
Mindy

 

[Clare.T]

Hello Mindy

Perhaps I am very confused, but do you know you have CNS Lupus yet ?
I thought you are seeing neurologist tomorrow to start getting diagnosed.

Until you know what is causing your symptoms, isn't it rather premature to be thinking what sort of treatment is needed. There are other drugs that might be perfectly suitable and would normally be tried first.

Apologies if I have misunderstood your situation.

Cheers
Clare

 

[mindyandy420]

No need to apologize. I totally understand. I have not been dx. I am jumping the gun. I was just curious as to what information is out there.
Fear does amazing things.
I will keep everybody posted on what I find out.