TheLupusSite.com banner

1 - 13 of 13 Posts

·
Registered
Joined
·
718 Posts
LOL Chris, so we have Rupus now. I'm thinking it does sound a little better than lupus.
What will they come up with next?
 

·
Registered
Joined
·
4,369 Posts
Hi Christine,

Yes I've heard of this term! Combination of names given sometimes by the medcial profession for those that have both Rhuematoid Arthritis and Lupus!

Take care!
 

·
Registered
Joined
·
4,968 Posts
My childhood dog was named Rhupus.:lol::lol::lol:

Interesting reading, Interesting name.

Hmmm, I agree, what will they come up with next?

Hope your weekend is going well.:wink2:
 

·
Registered
Joined
·
7,800 Posts
Lesley is right. It is a name for people who have both lupus and RA (or RA and lupus). I don't know if it is an "official" term.

Katharine
 

·
Administrator
Joined
·
7,565 Posts
Hi Christine

I hadn't even realised until recently that it was possible to have both. I have lupus and just been confirmed that the arthritis in my hands is rheumatoid. I was wondering, do you have this or do you have any other info on it? I am still searching for info to try and understand it.

Thanks

Deb
 

·
Registered
Joined
·
1,835 Posts
I got that tag from my Rhumy visit before last. I think he read an article about the classification, since I fit...he gave it to me!

Stephanie
 

·
Registered
Joined
·
29 Posts
Most interesting . . . perhaps this is why the Rheumatologist I saw last summer was only prepared to say that I have a "lupus-like disease" (despite being ANA+ >640 titre, anti-DNA+, anti-Ro+ and APS+). This is all because I was diagnosed 25 years ago with Stills (aka Juvenile RA) by a now eminent Rheumatologist and he didn't feel that he could go against his diagnosis (also despite the fact that I had kidney and liver failure at the time which puzzled all the doctors as is not typical for RA . . . fits the picture if with hindsight it was lupus all along though!)

Of course I know know better . . . I've got Rupus!!!!! Makes me want to bark or howl at the moon or something . . .!!!

Love,

Lily x
:lol:
 

·
Lisa_S
Joined
·
441 Posts
My sister has RA, but her rheumy says it's actually more like "rhupus", because she has some symptoms which are lupus-like.

He's of the opinion that auto-immune diseases are more of a spectrum than a "basket A or basket B" kind of diagnosis. The treatments are similar, so I suppose as long as the treatments are helping, it matters less what the label is!

Lisa
 

·
Registered
Joined
·
368 Posts
:hehe:I have been diagnosed with rupus. I've had lupus for 14 yrs., but symptoms are primarily joint problems. (I thought my rheumy made it up) Cathy
 

·
Registered
Joined
·
108 Posts
Rupus is how I was label, first I was told I had lupus and 5 years ago they also realized I have RA as well, so my doctors all have labeled it Rupus. I even asked them directly what the heck is Rupus and my doctor I have now was sweet enough to explain it to me. What was funny is I was chosen for a panel in Oklahoma doing a study on lupus and they has no idea what it was so they contacted me and I had to explain it to them.

Hugs, Dawn
 
1 - 13 of 13 Posts
Top