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8,577 Posts
Hi all,
Last week I posted about flaring without an increase in joint pain well I am flaring and after our drive down and back I have the joint pain now too.
My doctor didn't even do the customary take my list when he came in the exam room. He came in an immediately wanted to double check what medications I was on. Asked about the prednisone, I guess not all his patients follow his directions, and became even more concerned.
He looked at me and asked about the ct scan of the lungs as he didn't have the report, I tried to remember but couldn't explain it right. He put me on 40mg of prednisone for 5 days starting today and then I am to call him next Monday. So I will have been back off of it 2 days at that point. After he downloaded the report on the ct scan he found that there is no auto-immune problem with my lungs. At that point he had the woman taking my blood add a "full" lupus panel to my lab work being done.
My Rheumy doesn't normally run a lupus panel. I have been with him almost 5 years now and this is the 3rd time he has run it. Because of the lack of positive results (other than ana and the igm cardiolipin) they give him no feedback on disease process. One of the concerns with Enbrel is the development of "lupus like" disease with a positive dsdna being the biggest concern. Fortunately I will be able to find out next Monday the results to the labs , that is not too long of a wait compared to many others here. From what I could find earlier today the dsdna will return to normal after the problem medication (like Enbrel) is ceased. However I also found some other notes where there are starting to be some renal issues with patients who developed dsdna after taking a TNF Inhibitor.
I really don't want the Enbrel to be the cause of the problems. It is the one medication that has given me the most consistent stability and the only one that has truly reduced my pain levels and increased my energy levels. On the other hand something is causing my increasing edema and I don't accept the answer that it is my medications. My fatigue has gotten considerably worse in the last few days. By tomorrow I should be bouncing off the walls from the prednisone and if so I will use the time to accomplish some tasks that really need to get taken care of.
I have always had a rocky road with the diseases and was hoping the Enbrel was going to give me a good long period of feeling pretty good. Praying what ever this is that it is shortterm and will be solved quickly.
Karen
Last week I posted about flaring without an increase in joint pain well I am flaring and after our drive down and back I have the joint pain now too.
My doctor didn't even do the customary take my list when he came in the exam room. He came in an immediately wanted to double check what medications I was on. Asked about the prednisone, I guess not all his patients follow his directions, and became even more concerned.
He looked at me and asked about the ct scan of the lungs as he didn't have the report, I tried to remember but couldn't explain it right. He put me on 40mg of prednisone for 5 days starting today and then I am to call him next Monday. So I will have been back off of it 2 days at that point. After he downloaded the report on the ct scan he found that there is no auto-immune problem with my lungs. At that point he had the woman taking my blood add a "full" lupus panel to my lab work being done.
My Rheumy doesn't normally run a lupus panel. I have been with him almost 5 years now and this is the 3rd time he has run it. Because of the lack of positive results (other than ana and the igm cardiolipin) they give him no feedback on disease process. One of the concerns with Enbrel is the development of "lupus like" disease with a positive dsdna being the biggest concern. Fortunately I will be able to find out next Monday the results to the labs , that is not too long of a wait compared to many others here. From what I could find earlier today the dsdna will return to normal after the problem medication (like Enbrel) is ceased. However I also found some other notes where there are starting to be some renal issues with patients who developed dsdna after taking a TNF Inhibitor.
I really don't want the Enbrel to be the cause of the problems. It is the one medication that has given me the most consistent stability and the only one that has truly reduced my pain levels and increased my energy levels. On the other hand something is causing my increasing edema and I don't accept the answer that it is my medications. My fatigue has gotten considerably worse in the last few days. By tomorrow I should be bouncing off the walls from the prednisone and if so I will use the time to accomplish some tasks that really need to get taken care of.
I have always had a rocky road with the diseases and was hoping the Enbrel was going to give me a good long period of feeling pretty good. Praying what ever this is that it is shortterm and will be solved quickly.
Karen