Hi there
I'm really hoping someone can help me as I can't help worrying about what will happen next! I've had SLE for years and always sunbathed with no problems, but now all of a sudden (after exposure to UV lights in a class) I have what I'm pretty sure is a malar rash. Does this mean that I am now going to have problems with sunlight? It's freezing and foggy here so no way of knowing, but will I need to wear hats and all that in the summer? It's come as a shock to have something on my face, I know it's really vain but I was used to just hurting! It's faded a bit now, but I'm scared of it getting really bad in the future. Do these things progress? My other symptoms are also bad at the moment. I do remember at the end of the summer I started to find on hot days that I felt really ill, I wonder if that could have been sun in fact?
Also, I have had what I thought was eczema on my fingers and palm for ages but I just can't get it to go away, even with the strongest steroid creams. My hands are becoming a bit scaly. Could this be lupus too or is it just a coincidence? I just wondered.
Please please reply with any help as I am freaking out a bit about what is round the corner, I hate the way lupus always bites you with something new when you are least expecting it...
xHatty
I'm really hoping someone can help me as I can't help worrying about what will happen next! I've had SLE for years and always sunbathed with no problems, but now all of a sudden (after exposure to UV lights in a class) I have what I'm pretty sure is a malar rash. Does this mean that I am now going to have problems with sunlight? It's freezing and foggy here so no way of knowing, but will I need to wear hats and all that in the summer? It's come as a shock to have something on my face, I know it's really vain but I was used to just hurting! It's faded a bit now, but I'm scared of it getting really bad in the future. Do these things progress? My other symptoms are also bad at the moment. I do remember at the end of the summer I started to find on hot days that I felt really ill, I wonder if that could have been sun in fact?
Also, I have had what I thought was eczema on my fingers and palm for ages but I just can't get it to go away, even with the strongest steroid creams. My hands are becoming a bit scaly. Could this be lupus too or is it just a coincidence? I just wondered.
Please please reply with any help as I am freaking out a bit about what is round the corner, I hate the way lupus always bites you with something new when you are least expecting it...
xHatty