[louise67]

hi everyone, i am back at the eye clinic tomorrow to see if my scleritis is on the mend, but i fear it is still the same, on 40mg prednisalone. also i will be getting the results of my blood tests to see if anything shows up for a diagnosis of lupus. i am feeling very aprehensive. has anyone suffered episcleritis and how long does it take to go?
also i was told that on prednisalone my appetite would increase but in fact it has decreased quite a lot since being on it. im confused it doesnt take much to confuse me :lol:
i alo have been on permanent low dose antibiotics for over 2 years now for constant urine infection and blood present. i am waiting for the urologist to put a camera in and see what is happening but as i am also waiting for neuro results, for possible epilepsy he wont do it, and having read more about lupus now, i am worried there could be kidney damage. i feel such a wreck and such a hypochondriac at the moment, i just want to cry :worried:
please can anyone reassure me??

 

[louise67]

hi thanks, i didnt mean episcleritis, though i have had this before, and it was no where near as painfull as this episode, which is actually scleritis. i cannot take ibuprofen because it upsets my crohns disease. and i had already had a weeks steroid eyedrops, but they didnt make any difference.
thanks for the reassurance on the kidney side of things. i have had so many infections which they treat with a coures of antibiotics and inbetween times, to keep the infections away, they treat with permanent low dose of antibiotic. i now there is always blood present but not sure about anything else. thanks for the quick reply. i just want to feel well again.
take care xx

 

[louise67]

hi lily, what a lovely name, i am on trimethoprim for my urine infections. i have just got back from the eye clinic after waiting for a hour. i have had such a bad day.
well here goes my next tale of woe, it may take a while as i have another banging headache.
when the postman came, as usual i was shaking with anticipation, for results of my eeg which was done before easter, but nothing!! instaed a letter from incapacity benefit to say that as from now i will have no income, because in 2005, when i was on the tube feed and too ill to do anything about benefits or work, i missed a few national insurance credits. i am not allowed to catch up, and so am entitled to nothing. the doctor has signed me as unfit to even look for another job, in the foreseeable future.
so off to the hospital again, sat for a hour before i got seen, again!! they have lost my notes, ?????
anyway, eventually got seen and the eye is not responding to treatment of steroids so he has referred me to someone else at the eye clinic that deals with inflammation,and uveitis? i just seem to be passed from pillar to post, and a getting absolutley nowhere. i am so tired of it all, and just want to lie down and give in. and still having the headaches and pain that comes with it,
I NEED A MIRACLE !!!!! :sad: