[ValentineFlynn]

I seem to have what I call seizures; I pass out, shake, my eyes roll back into my head and I giggle.
A little while ago I had a EEG but it didn't show anything. I looked it up but could only come back with something about 'non-epileptic seizures' and 'pseudobulbar affect'.
'Pseudobulbar affect' is associated with neural conditions and brain damage and I know that Lupus is (sort of) a neurological disorder but everywhere I've looked I come up with nothing to say they are related.

So my question is: what are seizures like in lupus? Are my 'seizures' actual seizures?

 

[debatat]

I think only a neurologist could answer that question. As to seizures in lupus people experience different types. Have you got an appt with your neuro soon?

http://www.thelupussite.com/factsheets/lupus_and_the_brain.html

 

[ValentineFlynn]

Have you got an appt with your neuro soon?

I haven't seen my neuro in ages really. My rheumatologist seems to just have skipped over the 'seizures' and is more concerned about the rash at the moment; in fact the only appointment I have set up is a dermatologist appointment (in about five weeks).
What I was really looking for was a description of what it's like for people with lupus who have seizures so I could compare them for my own reference. I've been looking on the internet for descriptions like these but so far I've come up blank. I do a lot of googling between appointments; I makes me feel better and it prepares me more (so I can understand the doctors 'doc speak'!) *smiles*
I know the real facts have to come from the doctor and I won't jump to conclusions; I fully understand that each persons experiences are slightly different but I assume that they all follow a basic line? However what I really want to know if these are seizures or something else; I find it's highly likely that what I think are 'seizures' are in fact something else entirely!

 

[lazylegs]

Specialists tend to stick to their own area of study so I am not surprised your rheumy has skipped that area. If these episodes are current you should be seen by a neurologist.

An EEG does not always pick up seizure activity. It may take retesting for it to show up. Did you do the standard EEG or the sleep deprived one?

Take care,
Lazylegs

 

[ValentineFlynn]

Standard EEG.

 

[lazylegs]

In the event you continue to have a problem you should ask about a sleep deprivation EEG. It has a tendency to pick up more seizure activity.

 

[ValentineFlynn]

**Update
I got myself a new appointment with the neurologist on the 18 of next month. I'll have to ask about a sleep deprivation EEG lazylegs!