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Discussion Starter · #1 ·
Hi everyone hope you are well, I just wanted to pick some brains to find out if this just happens to me or is a more common problem in lupus,over the last month I have suffered a really nasty flare,I think it had been coming for a while.

I had suffered a lot of chronic uti infections over a 3 month period & then had to have pretty major dental surgery which left me quite low & so the lupus has reared its ugly head,
along with all the usual aches & pains,aching chest & short of breath,headaches fatigue & brainfog etc I have noticed that this time I seem to feel permanantly anxious,I dont think it is depression as I have had this a lot in the past & it doesnt feel the same,I just seem to get this awful knot in my stomach & I just feel anxious & worried but dont know why,does anyone else get this? & will it pass when the flare calms down again? because it feels just awful & I really dont know what to do to make myself feel any better,any tips would be greatly appreciated,thanks everyone x
 

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I have anxiety that has been with me since 1993 and it does not just appear if I am ill, it is there all the time. I take meds for this and it helps tremendously.

I am sorry your dealing with this but if it gets too bad chat with your doctor. I sometimes think it is par for the course when your chronically ill.

I hope your keeping well and this subsides for you. It is not a pleasant feeling to be anxious all the time.:mad:
 

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Hi, sorry you are experiencing this, as Karol says if you are experiencing a chronic unpredictable illness it is only natural to feel anxious. We never know what tomorrow will bring and we are unable to plan to the extent we were before.

I would have a chat to your doc to check there isn't another underlying cause such as thyroid etc and then there are always meds to help.

Let us know how you get on.

Take care

Deb
 

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I'm always anxious. Been plagued by panic attacks since I was about 4 years old. UCTD diagnosis is new.

I take effexor for the anxiety, and it's fantastic. I'm a cripple without it. I went from 4 full blown panic attacks a day, to none.

Best of luck,
Elizabeth
 

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I think my depression worsens when I am flaring and usually anxiety comes along with it. It also cause bad GERD or Esophagal spasm? Still working that diagnosis out.

I tend to think that the Lupus triggers this.

I do hope you you get some answers and relief.
 

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Since I had the stroke last year, I get anxious easily and even worse after the second stroke. I just try to take deep breaths whenever I panic or anxiety hits in. I'm not sure if this is because of all the things that have happened or if this is just lupus. Sorry I can't help as much, but I hope you feel better soon.

Cinnia
 

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Hi

I picked up on your post because I have just started feeling anxious in the last couple of days for absolutely no reason. I've checked the meds I'm on to see if anxiety is a side effect - but on the contrary I find that my anti-depressive Efexor (300mg/day) is used for combatting anxiety.

I've come to the conclusion that it must be a symptom of the lupus. As I have had substantial CNS involvement (including brain lesions) - I am not all that surprised.

As others have suggested - perhaps you should seek help from your doc - no point in suffering unnecessarily.

I hope things improve for you soon.

Merle
 

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The top English lupus specialists, like Dr Hughes and his colleagues, mention the frequent association of anxiety states phobias and of course depression with lupus - it is in the St Thomas ' Alternative' Criteria list. About 40 years ago I had a very bad episode, literally crippled with extreme anxiety for several months, terrible agoraphobia.

I was lucky enough eventually to see a good psychiatrist who taught me breathing and relaxation techniques to deal with the very real physical panic feelings. Medications were also a great help. Just as important, I got idea of the sorts of situations that I react especially badly to and also a greater awareness of impending trouble, signs such as experiencing deja vu and delusional smells or sometimes feeling that I was going to fall down.

I have been fine until this past year when I have had to face new sorts of stressors. Luckily I realised I was depressed because of readily identifiable classic life events and have been on Prozac which I am finding very helpful. It takes the edge off so I don't get overwhelmed and helps me get back to sleep when I wake early in the morning instead of lying awake worrying myself sick. Even if the stressors can be identified it is not always possible to eliminate them and things tend to go from bad to worse as one gets more and more sensitised. I had a less serious recurrence a few years back when I found Zoloft very helpful

I hope you will acknowledge the need and see your GP and be able to get some medication to help you through and give you that space you need to learn to cope. This is as real as physical pain. Investigate breathing techniques - it is easier when you have a mentor of course so I hope you can find guidance there and somebody competent to help you work through whatever is bothering you and give you confidence

All the best and many sympathetic hugs

Clare

PS I know my GP is going to suggest reducing the dose so I thought I would see how it goes before agreeing to it. Guess why I am up at 6am :) Luckily I can go back to bed and catch up on my sleep. If I'm not sleeping enough I disintegrate rapidly.
 

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Discussion Starter · #9 ·
thanks everyone I have indeed told my doctor & he has prescribed some anti anxiety medication for me as well as arranging for me to see the practice councillor if I need to talk things over as well & he was really sympathetic
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what you said clare really struck a chord with me because I too had been getting this sense of impending doom & thinking that something awful was going to happen to one of my children or my husband would have an accident on the way home from work & things like that & I was laying in bed worrying about all sorts of things that would probably never happen & so wasnt sleeping well either,
thank god for this board & the lovely people on here - it helps so much just to be abne to talk to others who know & understand this ****** awful illness & how it affects us,thankyou & big hugs to all x
 

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hello shelly

Just a thought,I used to go to meditation classes this helped me as it concentrates on the breathing. Needs practice but I find it calms me down.

dixy
 
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