My daughter has lupus and also has had blood clots. You have to listen to your body, you know your body better than anyone else. If you are worried I would not wait because you will just make yourself feel worst by worrying. It could be a blood clot, or something else . Its best to be safe then sorry. you would think if it was your lupus both legs would be swollen. Did you try and put your foot up and put a heating pad or hot water bottle on it? My daughter is in a very bad flare right now and both her legs and feet were badly swollen (which she had checked out but just inflammation not her kidneys or blood clots) I hope you can get this taken care of I know its no fun having all these problems and this nasty lupus.... I wish you the best of luck, and maybe someone else with lupus will be of better help. My prays or with you.. :blush:
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Good Monday morning everyone.
I was just in chat with Greenhaggis and let her know I did go to the local ER. They did blood work that indicated a clot and the ultrasound confirmed it. One behind the knee and the other in the calf of my leg.
They immediately placed me on IV heparin and now I am on oral coumadine. I have to go see my Rheumy on Thursday. He was going to put me on oral blood thinners at this weeks appt. anyway so I just got started earlier I guess.
I am shocked that I did not have much pain with 2 clots.
Everything I googled talked about pain so I did not rush off for that reason. Lesson to learn is that not all clots cause pain and my level for pain is high so I guess I can be my own worst enemy at times.:blush::blush::blush:
The leg is a little better, still swollen but heading in the right direction. My capillary refill response is slow in my toes but getting better too. Gosh how much we can learn with a trip to the hospital.
My SCL70 antibodies are really climbing higher and I am starting to get calcinosis cutis that is effecting me in different areas of my body. I am so nervous that I will develop full blown Scleroderma and that scares me so bad.
I cant pray any harder then I already do. I find myself chatting with God all the time. I think he must be tired of hearing my voice.:rotfl:
Anyway, I do appreciate everyone's support. You are all a GOD SEND to me and I thank you all from the bottom of my heart. I love you guys!!!
I was just in chat with Greenhaggis and let her know I did go to the local ER. They did blood work that indicated a clot and the ultrasound confirmed it. One behind the knee and the other in the calf of my leg.
They immediately placed me on IV heparin and now I am on oral coumadine. I have to go see my Rheumy on Thursday. He was going to put me on oral blood thinners at this weeks appt. anyway so I just got started earlier I guess.
I am shocked that I did not have much pain with 2 clots.
Everything I googled talked about pain so I did not rush off for that reason. Lesson to learn is that not all clots cause pain and my level for pain is high so I guess I can be my own worst enemy at times.:blush::blush::blush:
The leg is a little better, still swollen but heading in the right direction. My capillary refill response is slow in my toes but getting better too. Gosh how much we can learn with a trip to the hospital.
My SCL70 antibodies are really climbing higher and I am starting to get calcinosis cutis that is effecting me in different areas of my body. I am so nervous that I will develop full blown Scleroderma and that scares me so bad.
I cant pray any harder then I already do. I find myself chatting with God all the time. I think he must be tired of hearing my voice.:rotfl:
Anyway, I do appreciate everyone's support. You are all a GOD SEND to me and I thank you all from the bottom of my heart. I love you guys!!!
Hey ((((((((Karol)))))))) :hugbetter:
Sorry to hear about your hospital adventure... Sounds like a scary experience indeed....
I'm glad you went in and got treatment though! Blood clots can be extremely sneaky and extremely dangerous....
Hope the coumadin works well for you!
Best of luck for your appointment on Thursday!
:grouphug2:
Zoi
Sorry to hear about your hospital adventure... Sounds like a scary experience indeed....
I'm glad you went in and got treatment though! Blood clots can be extremely sneaky and extremely dangerous....
Hope the coumadin works well for you!
Best of luck for your appointment on Thursday!
:grouphug2:
Zoi
I had a similar experience. Usually as soon as I put my foot on the floor from getting out of bed, I knew I had a clot.KarolH;524340 said:I am shocked that I did not have much pain with 2 clots.
However almost 3 years ago, I had no warning at all and ended up with 2 massive clots; one in each lung and there was still an 1 1/2 clot left in my leg behind the left knee. So it is pretty scary. And this was the beginning of Lupus. Don't know which came first.
I too am on blood thinners for life. I'm okay with that!
Take care and I'm glad things worked out for you.
Nutty
Thanks Gerri and Nutty.
It really is scary to have no pain with blood clots.
Pain is typically what lets us know there is a severe problem.
I am never typical though...
It really is scary to have no pain with blood clots.
Pain is typically what lets us know there is a severe problem.
I am never typical though...
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