Hi Kezi
Welcome to the Forum. Im sorry to hear about all your health problems and your miscarriages. It certainly sounds like something else besides CFS is going on with your body. CFS is usually a diagnosis of exclusion, i.e. when all other possibilities have been ruled out. I think if your doctor simply ruled out thyroid and then declared you had CFS he has been very remiss
Some of your symptoms could be lupus related but there are many other autoimmune conditions which display similar symptoms so the most important thing is for you to get a referral to a Rheumatologist so that they can do some detective work. The easiest way for most people to get a referral is to have a positive Anti Nuclear Antibody test result (ANA) which justifies a referral to a specialist.
Can you go back to your doctor and tell him that you think something systemic is going on with your body and that your symptoms may be inter-linked? Its always best not to mention the word 'Lupus' or indeed any other specific condition as it tends to introduce a 'dynamic' between doctor and patient that you really dont need right now. Certainly tell him you are concerned you could have an autoimmune problem and would like to have an ANA test carried out. If this comes back positive at high enough titres then you are on the next phase of your diagnostic journey.
Its important to remember that there is a very small percentage of people with Lupus who dont have a positive ANA but thats for another day's worry
In the meantime, list down all of your symptoms and keep a diary from today of how you are feeling healthwise. This will help in any upcoming rheumatology appointment you might get.
There is another autoimmune condition known as APS or Hughes Syndrome which is associated with miscarriages and you might like to check this out and see if anything rings a bell. Here's a link for you to a reputable site
http://www.hughes-syndrome.org/
Another condition worth considering is Sjogrens Syndrome which presents with a range of symptoms including dry mouth. Heres a link about it
http://www.sjogrens.org/
Many people can have an overlap of autoimmune conditions so having one doesnt exclude having another. The important thing is to get yourself to a specialist and they can begin to do the specialist antibody testing needed.
The very best of luck and we will help you any way we can
Take care for now
Joan:rose:
Welcome to the Forum. Im sorry to hear about all your health problems and your miscarriages. It certainly sounds like something else besides CFS is going on with your body. CFS is usually a diagnosis of exclusion, i.e. when all other possibilities have been ruled out. I think if your doctor simply ruled out thyroid and then declared you had CFS he has been very remiss
Some of your symptoms could be lupus related but there are many other autoimmune conditions which display similar symptoms so the most important thing is for you to get a referral to a Rheumatologist so that they can do some detective work. The easiest way for most people to get a referral is to have a positive Anti Nuclear Antibody test result (ANA) which justifies a referral to a specialist.
Can you go back to your doctor and tell him that you think something systemic is going on with your body and that your symptoms may be inter-linked? Its always best not to mention the word 'Lupus' or indeed any other specific condition as it tends to introduce a 'dynamic' between doctor and patient that you really dont need right now. Certainly tell him you are concerned you could have an autoimmune problem and would like to have an ANA test carried out. If this comes back positive at high enough titres then you are on the next phase of your diagnostic journey.
Its important to remember that there is a very small percentage of people with Lupus who dont have a positive ANA but thats for another day's worry
In the meantime, list down all of your symptoms and keep a diary from today of how you are feeling healthwise. This will help in any upcoming rheumatology appointment you might get.
There is another autoimmune condition known as APS or Hughes Syndrome which is associated with miscarriages and you might like to check this out and see if anything rings a bell. Here's a link for you to a reputable site
http://www.hughes-syndrome.org/
Another condition worth considering is Sjogrens Syndrome which presents with a range of symptoms including dry mouth. Heres a link about it
http://www.sjogrens.org/
Many people can have an overlap of autoimmune conditions so having one doesnt exclude having another. The important thing is to get yourself to a specialist and they can begin to do the specialist antibody testing needed.
The very best of luck and we will help you any way we can
Take care for now
Joan:rose: