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Discussion Starter · #1 ·
Hiya

I have been feeling so tired lately especially in the morning and evenings, I wake up feeling tired, sore and achy, especially in my neck. I usually try to go to work anyway because i can't call in sick everyday I am like this almost everyday lately. If i do go to work i just seems to use up all my energy and i go home and basically just go to bed. My hands and wrist are really sore and my joints. I have been calling in sick every week for the past month. My doctors told me I thinks i have lupus, but then when i saw the specialist he said he's not sure but it sounds like athritic pain. I do seem to have a fair amount of bruises but i work in a heavy lifting environment and i do seem to get a little clumsy. I get dizzy and faint headed spells and one stage i had nausea. Does it sound like lupus or could it be any kind of athritis? I did have a couple of epileptic seizures as a kid but am not considered to be epileptic and was prone to rashes like ezxema and have had a couple of unexplained rashes just not lately.
 

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Hello Pixie and ((((((hugs))))))

I'm sorry to hear that you're still feeling so bad. It is very clear that something IS going on with you.

In your shoes, I would be chasing up that ANA result and also the specialist. I mean saying that something arthritic is going on is fine but what does he propose...? You need some kind of treatment tried.

Unfortunately lupus is a very complex disease and also one that mimics many other diseases so I'm afraid it would be hard for us (with that info) to hazard a guess as to whether it is or isn't lupus. What is important is that you know something is wrong and you have to keep pestering and making a real nuisance of yourself until the docs start listening.

Sorry I can't help more :hug:
Katharine
 

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Discussion Starter · #3 ·
Should i go back to my doctor, I will get another specialist appointment in about six weeks, so i thought i could just wait till then and see what he says about it. I also get blue hands and feet and they are usually cold
 

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Hi Pixie,

Usually when you see a rhumey that knows lupus you won't get diagnosed at the first visit. They have to run their own lab work, ask you lots of questions, exam.

If you have questions maybe you could ring your rhuemy?

Katharine is right lupus is a complex disease. That is why it is hard to get a diagnoses straight away.

Take care and keep us posted on how you are doing.

:hug:
Lyn
 

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Pixie,
You are not alone with this feeling lol. If only you could have a few good days a month. It can take it toll on you to be sick and tired so much of the time and it is worse if you were a very active person before. You might let your doctor know that this is all going and see if he can help in some way (a change in medicines or try something new for you). I do hope that someone listens to you soon in the medical community as you can feel better it just takes the right mix.
 

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Hi again,

It's good that you have an appointment in 6 weeks. It is true that you will very rarely be diagnosed at the first visit.

It is important to keep positive and also to make sure you make the doctor understand that you need treatment or something to be done. It is useful to tell the doctor what your illness stops you doing. Saying "it hurts" is a very vague notion but explaining clearly what you can't do sometimes makes them realise.

Sometimes taking another person along who knows you well can be very helpful as they will remember thngs that you might forget and can also make sure you don't play things down (we all tend to do that).

Best of luck at your appointment,
Katharine
 

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Discussion Starter · #9 ·
I got my ana test results that I had done sent to me and they are
Antnuclear ab : positive A
ANA titre: 320 (< 80) HH
ANA pattern : coarse speckled

A comment at the bottom says a course speckled pattern may be seen in SLE and SLE overlap symptom

it doesn't look like i was tested for APS, so I will ask about it at next appointment
 
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