Sister is sick !!!

338 Views 3 Replies 3 Participants Last post by halfpintfl, Sep 29, 2008

connie mitten

Discussion Starter · Sep 28, 2008

Hello,
This is Connie, when I have been here a few times, Claire, and many others helped me alot. I am at the point where I can't even discuss my health right now, so I have not been here for a while. I was diagnosed with systemic lupus since I have been here.
Meanwhile while I was searching, and dealing with my own health issues, concerns, and trying to educate myself on Lupus, my sister was so sick, with other health problems. She got into a motorcycle accident, and needed her knee skin graphed. It was a nasty accident, she was thrown, and lucky that she survived it. Ever since the surgery she has been sick. She started getting very little specs of what appeared to be moles all over her body, then they would open up, and turn into big ulcers, for a while they thought it was Merca. She has been to many hospitals, and docs for around 2 years, in bed sick. Next they said it was parasites, eating at her, possible sand flies. Her lesions have went from her legs to her face, and head. 2 days ago, a very small black spec I will call it, turned into a full blown ulcer looking lesion over night. She went back to a very reputalble hospital yesterday, and this doc, at least the 20th one in 2 years....said Lupus. Now I am lost.....possible Discoid/vulgar??? What about the how it starts out as black little moles, one doc thought cancer...so they did an ana and now she is waiting. If anyone has any input in this I would appreciate it, it is really weird, how they start out as black little moles, then they ulcerate, What ever it is, it is worse at night....thanks for all your help..
Connie

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halfpintfl

· #4 · Sep 29, 2008

:sad:Hi Connie, I am usually on this board once or twice every day, but I have had to just sit home and watch, as my health has gone down the tubes. I am so sorry that you and your sister are doing so badly, and I can't come up with some great, bright idea. The only thing I can think of
is: can you go back to that reputable hospital and see that same dr., ask him to show you how he arrived at the dx of
Lupus. Then if that goes nowhere, ask him if he could reccomend aspecialist dr. in lupus. if not can you go to a
teaching university and talk to the person that looks over the Rheumatology dept. They always have someone ( like a receptionist) that will sit and help you. I wish better health for you and your sis.:wink2:

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