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Discussion Starter · #1 ·
Hi all,

For the last 6 years I have been receiving treatment (false tears and oily night-time cream) to help with the dryness/scratchyness in my eyes. I also have silicone implants in my tear ducts which helped greatly especially in the Summer time.

My eye specialist or his staff have never told me if I have Sjogrens. I do have 'Map-dot dystrophy' and 'Pigment Dispersion' which in the last 1.5 years have not got any worse. I was diagnosed with these problems when I was 5 months pregnant with 3rd child. Specialist thought problems could have been triggered by my constant vomiting.

Since then although they know I had a positive ANA the eye clinic has not done any further testing. I did have the paper test and that's all I remember.

'Are there more specific tests to diagnose Sjogrens?'

Lesley
 

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Discussion Starter · #4 ·
Thanks again everyone! I don't know what I'd do without this site for info.

Maia, What are the drops you mentioned for! At times I have asked Specialist if there is a painkiller that I can apply directly to my eye. There is one but apparently is can cause damage. Unless the weather is really hot I can't really use the day time false tears as I find I then can't see to drive for at least 30 mins, which is no good when I have to do lots of different school runs!

I am finding that all Specialists that I see are reluctant to give names to any conditions that I have. I have had mention that it is easier to get insuance if they do not note conditions on your files, but I'd rather get recongnition and proper treatment. The eye specialist treats me like someone that has no life and can just put drops in my eyes before the care of my kids - perhaps it due to most of his patients being 20 years older than me, who knows!!!

I do find like others treatment in the UK is lacking in something!

Lesley
 

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Discussion Starter · #9 ·
Thanks everyone! I will ask my specialist if he can confirm or rule out Sjogerns with me.

Lis, I used to put drops in every 30 mins but found it very impractible when I then had to drive and vision was a bit blurry. When I attened eye A&E for a scratch in my eye they said I should try the silicone plugs and inserted them there and then. These plugs have for me cut down the times I have to use day time drops!

I use Celluvisc, which are excellent and come in disposable capsules. Plus and oily cream at night as like others my eyelids stick to my eyeballs!

Take care everyone!

Lesley
 
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