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17 Posts
Hi everyone
I hope you don't mind me asking a few questions. I am so confused right now and feel that the hospital have the upper hand
I have been suffering from Urticaria Vasculitus and angeodima for nearly two years with no relief from the pills and potions I have been given and to be truthful I have been quite disatisfied with the treatment I have recieved.
I went to the hospital this week and demanded answers because I cannot go on like this anymore. I know that Lupus test have been run before but came back clear. I have aksed the hospital to re run the test before but they refused
I have been suffering really badly with prickly heat on top of the other problems, joint and muscle pain, spondylitis, tiredness and the lumps and bumps on my skin. The doc has now said that I am photosensitive and needs to redo the Lupus test as she knows that my problems are caused through my immune system but to be honest I am so confused by what she has said.
I have been put on Plequenil tablets and sent home with information on Methotrexate, Ciclosporin and Azathioprine/Imuran as once a cretanine test has been done is the tablets I will be put on, well I think one out of the three. I am not sure if the tablets I have been told to read up on are Lupus treatments but the doc did say it is not a decision she has taken lightly to consider these meds.
What I wondered is can a skin biopsy alone be used to make a diagnosis for Lupus or do the bloods have to back it up as well. The doctor said the biopsy would show one of three things but I can't even remember rightly how she described it because I was just bombarded with info that went over my head
I am so confused and fed up by it all now and I just wondered if someone could shed any light on the situation for me. The info on the new meds has frightened me I will be honest as it seems a big step up from just taking anti histmines, steroids and creams
Thanking you in advance for any info, it will be greatly appreciated
Jules
I hope you don't mind me asking a few questions. I am so confused right now and feel that the hospital have the upper hand
I have been suffering from Urticaria Vasculitus and angeodima for nearly two years with no relief from the pills and potions I have been given and to be truthful I have been quite disatisfied with the treatment I have recieved.
I went to the hospital this week and demanded answers because I cannot go on like this anymore. I know that Lupus test have been run before but came back clear. I have aksed the hospital to re run the test before but they refused
I have been suffering really badly with prickly heat on top of the other problems, joint and muscle pain, spondylitis, tiredness and the lumps and bumps on my skin. The doc has now said that I am photosensitive and needs to redo the Lupus test as she knows that my problems are caused through my immune system but to be honest I am so confused by what she has said.
I have been put on Plequenil tablets and sent home with information on Methotrexate, Ciclosporin and Azathioprine/Imuran as once a cretanine test has been done is the tablets I will be put on, well I think one out of the three. I am not sure if the tablets I have been told to read up on are Lupus treatments but the doc did say it is not a decision she has taken lightly to consider these meds.
What I wondered is can a skin biopsy alone be used to make a diagnosis for Lupus or do the bloods have to back it up as well. The doctor said the biopsy would show one of three things but I can't even remember rightly how she described it because I was just bombarded with info that went over my head
I am so confused and fed up by it all now and I just wondered if someone could shed any light on the situation for me. The info on the new meds has frightened me I will be honest as it seems a big step up from just taking anti histmines, steroids and creams
Thanking you in advance for any info, it will be greatly appreciated
Jules