[squeaky]

Hi Just wanted to connect with someone, the family all out so thought I would try the chat room.--I am not good with IT and it said it needs a plug in or something!!
Well usually I would grab a son to help me out but as it is Friday night they are out!!
So if anyone spots this thread any replies gratefully received.
I have been quite well until recently, unfortunately this made me think I could do 'normal' things like push the supermarket trolley with a weeks load of food in, unload it all and still have energy left to do a weeks ironing. Guess what?
Ended the day getting grumpy with family then wham next day awfull tummy 'problems' felt like I was getting the Flu- aches with hot and cold sweats.
I was so cross with myself.
Also I am waiting for result of a skin biopsy the gp did for me earlier in the week so a bit worried about that. She thinks it could be either Granuloma annulare (which I hope it is, as fairly harmless) or ?subacute cutaneous lupus,
Either way these things take time to get results back. So just have to wait.
Also had blood in Urine last Two times visit to Gp- she is not sure what to do about it and I feel she is hoping it will just go away!! I have a visit to Rheumatologist in Dec. so perhaps she will have some answers.
Oh and I peaked at request form and Gp had written Known mixed connective tissue _ my rheumy calls it Undifferentiated with mild Sjogrens and I dont know if 'it is just my age' It would be nice if we could 'all sing from the same Hymn sheet' as they say?:lol:
I am sorry this is so long but I feel better for having had a bit of a whinge.
Thanks, Sue

 

[granny weatherwax]

Hi Sue and Welcome to the site

One thing I have learned is there are a lot of people here that are always willing to listen and offer some great advice. I am relatively new to this myself, I was diagnosed with Mild SLE last year.

It has taken me a while to admit I am no longer superwomen. I used to go cycling and do lots of stuff, but gradually over time my body started telling me otherwise, and after a telling off from my GP when I sat down and burst in to tears because I couldn't cope with full time work (45hrs + a week) and all the other stuff and the house work (and the husband :lol I started to realise that I really had to pace myself.

Its not easy when you have always been active then you suddenly find you are not, but as my gran used to say, "the housework (or whatever) will be there when your not"... she was a very wise woman :rotfl:! I should have listened to her more!

I hope all goes well with the results of your skin biopsy and it is nothing too worrying! The waiting always seems to take forever. Please let us all know how you get on... and if you want any help at all this is the best place to come looking for it... they are a really great bunch! (Well I think they are)!:bow:

Take care of yourself and take it easy

Hugs
Claire xx

 

[sam101360]

Hi:

Welcome to the site. The Plug-in should appear in a bar along the top of the window and all you need do is download it and the chat room should open.

I was DX with SCLE early on via a skin biopsy, for me that was easily controlled with Plaquenil...the rest of the SLE symptoms came on like gangbusters less than 6 months after the first skin outbreak.

Not everyone is the same, many SCLE sufferers have a harder time controlling the rash but there are medications to help. Clare T is the resident expert and I am sure she will oput in her two pence worth soon.

My SCLE became the minor part of my DX and still remains under control.

I am sorry I don't have much to offer!

Stephanie

 

[KarolH]

Hi Sue,

Welcome to the board.

I am brand new to Lupus so I do not have any words of wisdom for you but I wanted to make sure I stopped by to say Hi.

Please let us know how you make out when you get the biopsy results.

Have you had any bloodwork or any other tests that point towards Lupus?

I certainly hope your biopsy shows negative for Lupus.

Nice to meet you and hope to chat soon.:wink2:

 

[squeaky]

Thanks Claire. Sam and KarolH, for your replies. I know the saying about the dust etc will still be there when i am not but I am having a hard time giving up on the Idea of a dust free and tidy home. -However with a hubby and 2 teenage boys I should know thats not going to happen!! I do know that I would rather have a messy house and feet everywhere bless 'em.

Did you cut back on your hours at work Claire? My work allowed me to work part time with longer days Mon. Tues. Thurs. and Friday and I have Wednesday off. So far that seems to work better for both myself and them.
As you say we cant be everything to everyone and something has to give.

I wasnt too worried about the rash on my leg, the doc seemed more interested in it( she has just finished a dermy update so suspect she wanted the Practice). I was more concerned about ared area on my neck that rarely goes away she told me it was sun damage! despite my using factor 50 on our recent holiday and me not being a sun worshipper I tend to go for a shade to shade walk if you know what I mean.
Anyway whatever it turns out to be it cant be helped now.

In answer to you KarolH I have had a Pos. ANA with pos antiSm in the past but since being on Plaquinil I have been neg since. My other symptoms - Muscle and Joint pains and gastric probs still come and go but compared to many here they are very mild so cant complain.

Take care
Sue

 

[Clare.T]

Ha ! Clare doesn't have even a farthing's worth of imput, a farthing being a quarter of an old penny & 2.5 of them equalling a new penny.
It'll be interesting to know what the biopsy shows. Legs would be an odd place to have subacute especially if you are very careful about sun exposure, and I'd have thought that an experienced doc could see a difference between the two conditions despite the variations of type each can have. But who knows. You might have hit the nail on the head squeaky, that she's practising her new field of expertise.
Docs need to put some indication what's being looked for in a biopsy and her writing mixed CTD is just a general indication not a formal diagnosis. Anyway, these terms are basically artifical man devised and lots of people don't fit neatly into the classification terms.


I'm glad you are feeling better on the whole and hope whatever was upsetting you wasn't the start of a major flare. I do the week's shopping on line, takes about 45 mins max, and get it home delivered. It's worth every single penny. Hubby gets shirts laundered with the option of doing it himself. Lads that are old enough to go out on Friday nights are also old enough to do their own ironing.

Feel better soon and take things easy !

Cheers
Clare

 

[squeaky]

Thanks Clare,
Memories of good old coinage:lol:
Am I the only one that thinks good grief nearly 10 bob (shillings for all non uk folks!) for a chocolate bar!!
I am very tempted to get shopping on line but am "lucky" to live on a village within walking distance of a large supermarket so would miss the thrill of looking for bargains:rotfl: Usually my hubby or one of the lads come to push the trolley so cant complain.
Still waiting for results but not too worried now also last weeks aches and pains turned out to be a common cold- everyone at work seems to have one so I guess i cant be left out!!!
Hope you are well
Sue