I don't think I said before but the drug of choice was Methylprednisolone. And didn't answer Claire on bone scan. I had a density scan about
8 months ago as a routine because of family history on moms side and the nail patella I inherited from my dad. It was within normal range then.
I've been putting lotion they told me to use on skin areas where I apply Clobetasol to help with thinning skin. I put it on the tags too. Cetaphil daily hydrating Lotion
with hyaluronic acid. I also scrub them with the net shower scrubby I use and many scrub off. They are annoying and a bit itchy. Can't ever
just solve one problem. We have to create another. But in the big picture the tags aren't that bad.
The rash is still persistent on upper left arm, across upper back and around my hips. Was suggested that I go with minimal clothing a day or to to give
skin a rest at pressure points.
:cold: We keep the house cool. Right now it is 39* outside and 61* inside. I'd prefer warmer but there are two occupants who like it cool and say it's easier to add a
layer than for them to run naked
. So kinda hard to go minimal clothing during day. Did ditch bra and have on my husbands shirt, pajama pants, thick
fuzzy socks and gloves. I would wear a nose cap if I had one. Raynaud's and cold weather / cold house don't mix. I sent pictures of remaining rash to
doctor Friday and today getting renewal on Methylprednisolone. I guess until two weeks after last sign of rash this will be my routine.
Do have an appointment with a new dermatologist in closer to home Columbia but couldn't get in til Dec 11th. One in Nashville would see me the week after
Christmas. So plan on seeing the guy in Columbia and checking him out. I don't have to have him agree with what I think should be done, but need him to
listen and just treat me. Even if he is not sure what to do, decide what he thinks is the best route and try something. Anything. I have been passed around
like a plate of rolls on Thanksgiving dinner. Have had to change doctors when my insurance change and one that couldn't get things to work so sent me elsewhere.
Have you ever felt like a doctor was just frustrated and wanted to get rid of you.? That sounds awful but a few over the years couldn't figrue me out and so
passed me on without trying new things.
My PCP has tried a few things that have relieved issues while I wait to see the next guy in a string of specialists. At one point when I had my neurologist/brain surgeon,
an urologist, rheumatologist, dermatologist, optometrist etc. They didn't work well together and would disagree about the prescriptions the other prescribe.They constantly
contradicted each other. It about drove me insane. This was early on after SLE diagnosis. Only my neurologist I kept. He was just watching the brain tumor and never
prescribed anything til the pain pills and antibiotics after brain surgery.
I fired them all except my brain surgeon and told my PCP I was not going to anymore -ologists and that if he couldn't help me too bad. That's when he prescribed
some antidepressants and after a couple weeks we started over looking for new doctors. That was about 12-13 years ago. Can't count the people I have seen.
this is my upper arm with it's scales. Kinda tricky to take on my own and doesn't look as bad as real thing. It goes from shoulder to elbow. You
can see a few scabs where I clawed til it bled and the now yellowing bruising from clawing on the left side of picture. At times I have had this
covering 75% or so of my body. Right now it isn't irritated but as day wears on it will redden and as my daughter the nurse says it will be "angry"
Have a good day. I'm gonna go turn up heat in living room since have house to my own for a while. Have a new book to read and easier to do if not shivering.