The Lupus Forum banner
1 - 3 of 3 Posts

·
Registered
Joined
·
36 Posts
Discussion Starter · #1 ·
My name is Jacqui and I was diagnoised with SLE August 7th. My first recollection of there being a problem was May when I had lumps develop on my elbow....... Since then I have had 'the rash', fatigue and the join pain and headaches and Raynauds (problems with fingers and toes) and my eyes hurt. So far there is no organ involvement,:) but I know this can happen any time:(.

My biggest problem is fatigue and feeling emotional from time to time....... I also have a dull ache in my breast bone on the right side, but no problem when I breath and a funny sensation down my left leg. Also I have problems with my voice - from time to time it goes weak and my throat feels swollen - its all so weird :(and I'm not sure if any of this is Lupus linked or what.

I feel that every symptom that is associated with SLE I have - apart from problems with my organs.........

It is really good to read stories of what other people are going through and what they are doing to cope with this crazy illness........
 

·
Registered
Joined
·
36 Posts
Discussion Starter · #3 ·
Thanks for the email. It's such a blessing having somewhere when I can share how I'm feeling and hear how other people are managing their illness. Obviously there are some serious things that happen to alot of people and I'm truly praying that i'm suffering the worst of what lupus has to offer, but i'm prepared to get through this.

How you doing?
 

·
Registered
Joined
·
36 Posts
Discussion Starter · #7 ·
Hi guys,

Thanks for the posts. I am currently on 6 x Prednisolone and 2 x Plaquenil per day - I'm still waiting for them to work for me - I know it takes weeks/months for this to happen.

Yeah friends and family have been great.... I speak alot to my sister about how I'm feeling, but I do feel guilty about it though as she has MS and is confined to a wheelchair:(

I have been very fortunate with early diagnosis and treatment. Also I work in education so have currently been on a much needed 6 week break.....

I'm so glad I found this site :):):):)
 
1 - 3 of 3 Posts
This is an older thread, you may not receive a response, and could be reviving an old thread. Please consider creating a new thread.
Top