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51 Posts
After a 3 year ordeal, I was diagnosed with SLE last summer. This was my second rheumatologist. She also suspected a possible RA diagnosis too. I began Plaquenil and Mobic along with other meds I take. This regimen has been working (took some time). I still have some small flares here and there but there is a definite difference.
Now, I've had to get a new rheumy because my last one did not take my new insurance. Today was the 2nd time I saw this new guy. I did not get any warm fuzzy's the first time I met him. I figured he would just take over my treatment. All my records were sent to him.
He isn't sure I have anything. He tells me Plaquenil is so "generic" it doesn't really help inflammation but he'll keep me on it because it "seems to work for me". I also take Bactrim because of recurrent infections that my GP and nephrologist think could be Wegener's Disease. The new guy says, "well you can stay on it, it won't hurt anything". Also, he insists having a negative ANA means you couldn't possibly have Lupus. My ANA is mostly negative but I have had a few positives.
Now, this current Rheumy is very far away. Today it seemed he couldn't "suggest" a closer one fast enough. The type of insurance I have he accepts, however, he is with a different hospital which is not included in my plan. Hope that makes sense.
Interestingly, the hospital I go through does not have a Rheumatologist on staff. My GP has no problem giving me referrals. I put a call in and am waiting to hear from him. He's very good about it. I want to let him know about this moron (sorry) and to see if he could at least check out the place he is referring me to.
Anyway, I'm just venting and I've read many posts on this site that many have had to go through several rheumy's before finding the right one. Guess it's just my turn.
I know I'm not crazy and I know what helps and what doesn't. I recently broke out with mouth sores (never had before) and I mentioned this to him but it didn't seem to phase him a bit.
Thanks for listening!
Michelle
Now, I've had to get a new rheumy because my last one did not take my new insurance. Today was the 2nd time I saw this new guy. I did not get any warm fuzzy's the first time I met him. I figured he would just take over my treatment. All my records were sent to him.
He isn't sure I have anything. He tells me Plaquenil is so "generic" it doesn't really help inflammation but he'll keep me on it because it "seems to work for me". I also take Bactrim because of recurrent infections that my GP and nephrologist think could be Wegener's Disease. The new guy says, "well you can stay on it, it won't hurt anything". Also, he insists having a negative ANA means you couldn't possibly have Lupus. My ANA is mostly negative but I have had a few positives.
Now, this current Rheumy is very far away. Today it seemed he couldn't "suggest" a closer one fast enough. The type of insurance I have he accepts, however, he is with a different hospital which is not included in my plan. Hope that makes sense.
Interestingly, the hospital I go through does not have a Rheumatologist on staff. My GP has no problem giving me referrals. I put a call in and am waiting to hear from him. He's very good about it. I want to let him know about this moron (sorry) and to see if he could at least check out the place he is referring me to.
Anyway, I'm just venting and I've read many posts on this site that many have had to go through several rheumy's before finding the right one. Guess it's just my turn.
I know I'm not crazy and I know what helps and what doesn't. I recently broke out with mouth sores (never had before) and I mentioned this to him but it didn't seem to phase him a bit.
Thanks for listening!
Michelle