After a very stressful drive to London,arrived at St.Thomas's 10mins late.
Not kept waiting very long and went in to see Dr C.She seemed very nice but I also got the impression she had already made her mind up.My doctor had written a lengthy letter detailing how no other specialist had found anything yet and a whole page!about how he felt my depression(and implied that I had refused treatment!which is not true
)was clouding the diagnosis and that most of my symptoms were down to that.She wasn't that interested in all the problems I had written down and said that she didn't think it was due to an autoimmune disorder.She said that if it was lupus it would have shown in the bloods by now,as I have been feeling worse since the age of 15.She saw the photo's of my skin and said that I needed a good dermatologist.....you think?:wall: I've only been trying to get one for over twenty years!yesterday the skin was so tight on my hands,I couldn't bend them without the skin ripping.She mentioned a skin biopsy,but said that they could no longer sort that out and I would have to go back to G.P.
My husband is gutted,as was I ,as I felt this was my last chance to sort this out.I did the worst thing and started crying because I was so frustrated,only adding to the depression thing.
My first reaction was to jump off a cliff because I don't want to just 'exist' and feel like the living dead,but I would never leave my family.I am going to change my G.P and request to see my notes and what he has been writing about me.Then I am going to try antidepressants,but I can't see them stopping the joint pain,fatigue,anaemia,hands turning black etc.I cannot believe that not one doctor has offered a basic exercise tolerance test,or any pulmonary function tests,but I always have such a problem suggesting this to a consultant
My poor old husband,he just wanted 'me' back a little bit.
The doctor ordered some bloods ,but they were the same ones the rheumy had already done,so no guesses what the results will be.Nevermind,I will keep trying,
Julsie
Not kept waiting very long and went in to see Dr C.She seemed very nice but I also got the impression she had already made her mind up.My doctor had written a lengthy letter detailing how no other specialist had found anything yet and a whole page!about how he felt my depression(and implied that I had refused treatment!which is not true
My husband is gutted,as was I ,as I felt this was my last chance to sort this out.I did the worst thing and started crying because I was so frustrated,only adding to the depression thing.
My first reaction was to jump off a cliff because I don't want to just 'exist' and feel like the living dead,but I would never leave my family.I am going to change my G.P and request to see my notes and what he has been writing about me.Then I am going to try antidepressants,but I can't see them stopping the joint pain,fatigue,anaemia,hands turning black etc.I cannot believe that not one doctor has offered a basic exercise tolerance test,or any pulmonary function tests,but I always have such a problem suggesting this to a consultant
My poor old husband,he just wanted 'me' back a little bit.
The doctor ordered some bloods ,but they were the same ones the rheumy had already done,so no guesses what the results will be.Nevermind,I will keep trying,
Julsie