I am in the same boat
Hi Kasha
It has been awhile since I last posted. I had Rituxin in 2005 but then went on CellCept. I am still doing well on CellCept but am taking 5mg Prednisone along with 400mg Plaquenil plus other meds.
Rheum feels I should remain on 5mg prednisone indefinitely rather than risk a flare and needing to up the dose. I have been on some dose of prednisone for 4 years.
I would also like to know if others are getting completely off prednisone or taking a maintenance dose.
Sarah
Hi Kasha
It has been awhile since I last posted. I had Rituxin in 2005 but then went on CellCept. I am still doing well on CellCept but am taking 5mg Prednisone along with 400mg Plaquenil plus other meds.
Rheum feels I should remain on 5mg prednisone indefinitely rather than risk a flare and needing to up the dose. I have been on some dose of prednisone for 4 years.
I would also like to know if others are getting completely off prednisone or taking a maintenance dose.
Sarah