First let me say that my family is a bit disfunctional, who's isn't?, but mine is really sort of strange in some ways. But I do have my sister Julie, who is a registered nurse, and who is learning what she can about lupus and is interested in being a support.:rotfl: My mom and I have nothing in common unless it would be the fact that we continually misunderstand each other. Mom was putting me down about the weight gain and breathlessness, from prednisone--that is until she heard a woman talking to me at the pharmacy about how bad her weight gain was. :worried: Mom doesn't take what I have to say as true, she has to hear it from somewhere else, or someone else before she believes it.
A couple of weeks ago we went to the mall to the bookstore and all she could do was complain about how many times I had to sit down, and how much I weighed, and how out of breath I was.:sad:She kept telling me that I needed to get out and start excercising and quit just laying around.:worried: Well, if I could breathe while I exercised it would be helpful. Well, finally the cardiologist explained that the prednisone was causing all the difficulties, to which she said I told you so! She wouldn't listen to me when I brought that up, she just wants me off of that medicine. I would love to be off of it, and am beginning to taper off the prednisone starting today, my rheumatologist has instructed me to do so. Hopefully it will work and I will feel a bit better.:fingers: I try to be honest and open with her when it comes to how her comments come across and that seems to help a bit. Last night she was sounding like she was accusing me of eating too much and gaining the weight just from being lazy, I said she sounded as if she was accusing me and she said, oh she didn't mean to sound that way, only that she was concerned about what the medicine was doing to me. I am beginning to learn to speak up when I feel she is judging me or getting the wrong idea, that way things get all straightened out faster than if I sat around and stewed about it for hours or even days. Karly COMMUNICATION!:wink2:
A couple of weeks ago we went to the mall to the bookstore and all she could do was complain about how many times I had to sit down, and how much I weighed, and how out of breath I was.:sad:She kept telling me that I needed to get out and start excercising and quit just laying around.:worried: Well, if I could breathe while I exercised it would be helpful. Well, finally the cardiologist explained that the prednisone was causing all the difficulties, to which she said I told you so! She wouldn't listen to me when I brought that up, she just wants me off of that medicine. I would love to be off of it, and am beginning to taper off the prednisone starting today, my rheumatologist has instructed me to do so. Hopefully it will work and I will feel a bit better.:fingers: I try to be honest and open with her when it comes to how her comments come across and that seems to help a bit. Last night she was sounding like she was accusing me of eating too much and gaining the weight just from being lazy, I said she sounded as if she was accusing me and she said, oh she didn't mean to sound that way, only that she was concerned about what the medicine was doing to me. I am beginning to learn to speak up when I feel she is judging me or getting the wrong idea, that way things get all straightened out faster than if I sat around and stewed about it for hours or even days. Karly COMMUNICATION!:wink2:
