Hi All,
So I've been doing my bit, living with the Lupus, listening when it needs rest, taking more meds when necessary, blah blah blah....It kinda fits in with how my life is these days - I work, I go to college, etc so I think I've kept my end of the bargain up....
So why is it that this damn thing just won't let things lie? I've had my diagnosis for almost 7 years and usually I just get on with things but I have to say right now I am so hacked off with being 'ill'!!!!!!
About 18 months ago I started getting breathing problems. Then about 8 months later my knees dislocated snapping my patella tendons and my right index finger tendon snapping. It was all okay, I could deal with this, I got myself sorted and got back to college & back to the gym. I then got told the breathing problem was Shrinking Lung Syndrome. That's ok, I thought, I'll just exercise to improve the situation.
Yeah, right - not that simple! I've now had to appointments with the lovely Dr D'Cruz at St Thomas' but he is concerned as it would appear tha tthe blood tests for sticky blood (which we already knew I had) are far worse than first thought and he thinks this is why my breathing hasn't improved.
So I've had umpteen lung function tests, chest x-rays, etc and to be honest I'm just so fed up with hospital appointments & being prodded & poked. I've also been told I have the start of cattaracts and have been for a bone density test for oesteoporosis!!!!
AAAAAAAAAAAAAaaaaaahhhhhhhhhhhhhhhhhh!!! I've really had enough and just want to scream!
Sorry to offload on you guys, I know you have enough problems of your own & I usually try to to stay positive but right now, I just feel sorry for myself.
I also have a pig of a head cold - hey maybe that's the problem????.......
AmandaB
So I've been doing my bit, living with the Lupus, listening when it needs rest, taking more meds when necessary, blah blah blah....It kinda fits in with how my life is these days - I work, I go to college, etc so I think I've kept my end of the bargain up....
So why is it that this damn thing just won't let things lie? I've had my diagnosis for almost 7 years and usually I just get on with things but I have to say right now I am so hacked off with being 'ill'!!!!!!
About 18 months ago I started getting breathing problems. Then about 8 months later my knees dislocated snapping my patella tendons and my right index finger tendon snapping. It was all okay, I could deal with this, I got myself sorted and got back to college & back to the gym. I then got told the breathing problem was Shrinking Lung Syndrome. That's ok, I thought, I'll just exercise to improve the situation.
Yeah, right - not that simple! I've now had to appointments with the lovely Dr D'Cruz at St Thomas' but he is concerned as it would appear tha tthe blood tests for sticky blood (which we already knew I had) are far worse than first thought and he thinks this is why my breathing hasn't improved.
So I've had umpteen lung function tests, chest x-rays, etc and to be honest I'm just so fed up with hospital appointments & being prodded & poked. I've also been told I have the start of cattaracts and have been for a bone density test for oesteoporosis!!!!
AAAAAAAAAAAAAaaaaaahhhhhhhhhhhhhhhhhh!!! I've really had enough and just want to scream!
Sorry to offload on you guys, I know you have enough problems of your own & I usually try to to stay positive but right now, I just feel sorry for myself.
I also have a pig of a head cold - hey maybe that's the problem????.......
AmandaB