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Discussion Starter #1
Hi does anyone have sore skin. My skin often feels like Ive got the flu, its sore to the touch and feels very peculiar at times. Does anyone else get this, is this part of the sle?

Hugs to you all and thanks!

Julia
 

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Hi Julia

Its most likely connected to your Fibromyalgia. Tender skin is a common feature of fibro. Its called allodynia and its when the skin is extremely sensitive to the touch. I get this occasionally as I have fibro as well. In fact the skin on my legs is particularly sensitive today. I stepped into the shower this morning and I should have been alerted when the water felt like a mild stinging on my legs. :rolleyes: However when I got out I set about briskly drying my legs. Ouch and Ouch. It was like I was scrubbing a sunburn with sandpaper:eek: I dropped the towel like a hot potato expecting to see raw skin!

Luckily enough its not sensitive all of the time. I still havent figured out if there is any pattern to it. Sometimes its my legs - other times my arms. Sometimes my clothes hurt me a bit. If I'm wearing some kind of material thats slightly abrasive it can irritate quite a bit. The sensations I get are usually two different types. Firstly there is the one described above where my skin just feels raw - like it has been burned. The other sensation is feeling like I am bruised. I still check these spots when I get it to see if there are any bruises. Im constantly bemused when there arent. :rolleyes:

It is a nuisance and makes one go through daily life very 'gingerly'.

Hope this helps
Luv n stuff
Joan:rose:
 

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I have had this happen. usually a small area of skin on my arm but no rash area looks totally normal. Last time it happened it was the top of my head. It hurt to touch or if i placed my hand on my head and the hair moved. I kept saying my hair hurts! hubby looked, no redness looked normal. went away in about a week. Lisa
 

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Ah yes I forgot about the head:rolleyes: My head has been continuously ultra sensitive now for a couple of months. I only brush it once in the morning because its very painful and I have no need to inflict pain more than necessary!

Cheers
Joan:rose:
 

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Discussion Starter #5
Hi all

Thanks for your input; its interesting to note that you think iits related to the fibromyalgia side of things as I always put it down to having a lupus flare up. I will be sure to ask my consultant when I see him (which should be soon as my GP has now faxed him and he returns from hols tomorrow although I dont hold out much hope of seeing him soon at all if Im really honest!)

Hugs to all

Julia
 

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Hello Julia

I hope the fax works first time round. My GP had to send several before getting a response. Difficulties communicating with St Thomas' are appalling - not enough funding, all round, of course, but in particular this aspect of the health care provided. Dr Wallace lists ability to get in touch with your specialist as one of the requisites for successful therapy.

Good Luck
Clare
 

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Hi Julia,

I would agree with the others that that is frequently a fibro symptom.

I do also have very sore skin at times (but I don't have fiibro). It is not sore to the point of clothes bothering me as I know that they can with fibro patients but it does tie in with my worse days and is also always tender on the sides of my thighs which seems to be linked to some neuropathy. It can be very uncomfortable even with the lightest touch, especially repetitive (like if someone strokes your skin) and, of course, if banged or anything else.

I have sle and probable mysoitis overlap so I don't know which might cause the sore skin thing.

Katharine
 

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Ouch

I get the painful skin quite frequently. Apparently it is related to my fibro as well. I feel so very bruised and my clothing is very painful, even the sheets on my bed prevent me from sleeping as they touch my skin. Luckily it only lasts a few days for me, but yes...you expect to see black and blue bruising all over you, but of course there is nothing.

I'm on Lyrica to try to help with this, I still have it flare up frequently but perhaps the Lyrica helps to make it a shorter flare of pain, I don't know.

It's an awful feeling for sure!

Cheers,

Karin
 

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Hi Julia, yes, it is from the Fibro, and in time, it will lessen and go away.
Mine has returned a few times over the years, but only briefly and not to a high level. When I was at the beginning of Fibro, I would have to go to bed with no gown on, and ever so gently put just a sheet over me, as anything at all that touched my skin caused excrutating pain. Be well.
 

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Hi Julia,

My tender skin is usually the sign that I am going into a flare. Even the lightest of fabrics will hurt. In my case it has to be the Lupus because I don't have Fibro.

Take care,
Lazylegs
 

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Discussion Starter #11
Hi all

the sore skin was one of the very first symptoms I ever had and I do think it is to do with the autoimmune side as I originally had major problems with my thyroid (I had 2 thyroidectomies).

This latest flare is really very bad as today my skin really feels sore, I feel cold but my skin feels hot if that makes sense. It usually comes on and off and I take paracetamol to help with it. Its almost as if I have got a temperature but I dont register one which is strange :eek: .

Hugs to all

Julia x
 

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I've had that happen on occasion. I think I'm with lazylegs in that mine is lupus rather than fibro as I don't have it. To me it feels like nerve damage or as if my skin was scraped for hours on end. It usually lasts a few days to a week.

~Leah
 

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Discussion Starter #13
Hi Leah

Thanks for your reply; its interesting to note that a few people suffer the same problem without having the fibro.

Fortunately the steroids seem to have calmed it all down, thankfully!

Hugs

Julia
 

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Hi Julia,

My forehead is really sensitive right now and so is the skin on my arms..I Have both fibro and lupus ... hang in there :O)
 
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