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Discussion Starter · #1 ·
I have had seizures and i did have to go through speech therapy and basic learning skills again because of them. This was due to lupus. Lately i've been having trouble putting words/thoughts together and a lot of trouble spelling and typing. Is this something i should have checked out? ....Oh, along with migraines starting up again?
 

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Hi alisiajo,

If you have a Neurologist you usually go to I think it's a good idea to be checked out. Do you have APS? Your symptoms sound similar to someone who does.

love
Lily
 

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Again alisajo

You do need to see a neurologist to try find the reason.

I have APS as well as lupus and sometimes get quite muddled. Sometimes my typing looks like I am quite drunk, so I do not post on those days.

I am a lot less muddled since starting the betablockers as mentioned in my other post because it is very difficult to concentrate with a bad head.
 

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I'm not sure what APS is? I plan on calling on monday to set up an appt as i woke up AGAIN to day with a headache. I caught in time to take some medicing. They gave me fiorinal w/codeine/caffeine. It seems to help if i catch them in time. I just feel embarrassed though because i feel like i'm going stupid. I used to be an amazing typer and speller and now i'm very slow and i have to second guess everything. It's so frustrating.
 

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Hi Alisia,

I know exactly how you are feeling as I have had similar problems where my memory and concentration got very poor and I suffered from daily headaches for a very long time. Thankfully I haven't had seizures.

As the others have said, your symptoms certainly need checking out and I would also wonder about APS. It seems surprising with your history that you wouldn't have been checked for it.

APS is anti-phospholipid syndrome and it is basically a blood clotting disorder where your blood is too thick or "sticky". It can cause all sorts of symptoms including cognitive problems, seizures and headaches. Around 30% of people who have lupus also have APS though it can also exist on its own. Once diagnosed it is usually relatively easy to treat and control by using blood thinners (sometimes just one baby aspirin a day).

In any case I would certainly call your neuro if you have one and, if you don't, I would insist heavily for a referral to one.

Katharine
 

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Hi Alisia

APS is also known as Hughes Syndrome. Here is a link which you might find useful. Have a look through it.

http://www.hughes-syndrome.org/

Take good care and I'm glad you are getting this checked out :hugbetter:

Luv n stuff
Joan:rose:
 
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