The Lupus Forum banner
1 - 7 of 7 Posts

·
Registered
Joined
·
4,444 Posts
I do not have those antibodies - but I can tell you that even if you have high levels of antibodies it still doesn't mean that there is a high chance your baby will be affected by them. I think the rate of heart block and neonatal lupus is less than 2% on average across these studies. I assume you are under the care of a OB-gyn, and your baby will be monitored closely and looking for any evidence of heartblock through ultrasounds later on in your pregnancy.

We have had a few mothers go through pregnancy with these antibodies, but response rates are slow being close the the holidays so you may want to check back later and see if anyone has stopped by to respond in person about their experience. There are also a few threads in the Pediatric forum on our website about babies with neonatal lupus from these antibodies.

Here's one link that should be reassuring to you about a good quality study done on the topic of pregnancy and SSA antibodies...

http://www.ncbi.nlm.nih.gov/pubmed/12475001

Good luck to you and I hope you can come back and let us know when you've had your baby and he/she is safely in your arms. :)
 

·
Registered
Joined
·
3 Posts
Discussion Starter · #3 ·
Dear Maia, thank You so much for answering,
I will let You know for sure when that happy momet arrive!
I wish to You and all the "lupus - sisters" a Merry Christmas and a happy New Year, withouth any Lupus simptoms!
 

·
Registered
Joined
·
4,968 Posts
Good luck with the baby and keep us posted.

I do not know anything about the antibodies you mentioned but Maia gave good advice here.

Merry Christmas to you too.:wink2:
 

·
Registered
Joined
·
29 Posts
Hi there - just wanted to let you know that I am also SSA/anti-Ro positive although I don't know the levels I'm afraid. Didn't know this with first pg but found out before 4th pg . . . the docs did not do anything different with the pregnancy although I found out afterwards that they should have been monitoring the baby's heartbeat much more closely. It is implicated with foetal heartblock which can cause stillbirth and also with neo-natal lupus in the baby. I know this sounds really scary but luckily even with carrying this antibody the chances of adverse effects are rare. Both my two little ones (other pg's were m/c's) were fine.

Hope things go well for you but please make sure you get lots of checks as I was horrified that I was just left to fate (with my last pg I didn't see the midwife between week 14 and week 26 because she was such a lazy woman and lo and behold at 26 weeks I already had signs of pre-eclampsia setting in).

There is certainly a lot of complacency around antenatal healthcare in the UK in my experience . . . sorry forgot to take a note of where you're based!

Best wishes,

Lily
 

·
Registered
Joined
·
17 Posts
I have ro and la antibodies I don't know what the levels are. I have 3 children 1 has heartblock and a pacemaker he is in very good health no one would ever know. You should be monitored by high risk ob the develpment of heartblock usually occurs during 17-24 week gestation. hope this is helpful. Congrats on the pregnancy !!!!!!
 

·
Registered
Joined
·
3 Posts
Discussion Starter · #7 ·
THANK YOU GIRLS ON INFORMATIONS!
I AM STILL NOT PREGNANT BUT PLANNING PREGNANCY..I AM 32, AND HAVE NO CHILDREN, AN AM SO AFRAID BECAUSE OF THIS LUPUS...

There is certainly a lot of complacency around antenatal healthcare in the UK in my experience . . . sorry forgot to take a note of where you're based!

Best wishes,

Lily
 
1 - 7 of 7 Posts
Top