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Hello, new here. I am a nurse originally from America now living in the UK (Chesire area). I have lupus but never had any real problems with it until about 6 months ago. I started a new nursing job and was told I needed the MMR since I had no coverage to Mumps. Within 4 weeks I was very ill. Although the flare is essentially over, I have been left with chronic tendonitis and bursitis on the botom of both feet and ankles. Needless to say, I can no longer work and live each day in pain and walking is almost immposible. Can't get any help with my feet. Podietry won't touch me and GP refuses to send me to orthopedics in case they plaster/cast my feet and destroy my ankles which have arthritis in them. Anyone else suffering with this? I am in the process of trying to apply for benifits, however I find it very difficult to do becasue that is accepting defeat. Currently on 17 different medications and I am getting fatter by the minute. I look teribble and feel even worse. Even had perminent eyeliner tatooed, temporary fix to my self esteem I guess. Husband thought it was a mid life crisis. I guess the eyliner and extreemly short haircut dyed red was to much to handle in 3 hours. (not recommended if your on steroids) short haircuts only make your face fuller.) Looking foward to hearing from someone
 

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Hello Stacilee and welcome!

I'm sorry to hear that you have had such a tough time these last few months.

I'm afraid I can't comment on your problems as I haven't had any experience of that but it really doesn't sound pleasant at all :(

It is very hard to accept that you can't work and the numerous other changes that being ill can bring about. I would hope that with time there could be some solution for your foot and ankle problems which would allow you to become more active slowly and regain a good deal of self esteem. I have to say that the red hair made me laugh! I have stages of wanting to do such things though I don't necessarily have to be feeling so low to do it - I'm just a bit mad at times :hehe:

Sorry I can't "help" more but I just wanted to welcome you here. I hope that you find the site as supportive and helpful as I have.

bye for now,
Katharine
 

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Stacilee,

I am sorry that you are in a flare and are unable to work now. I hope you get some relief from your feet and ankles soon. Sometimes we do things to make ourselves feel better when we are down . I know I have done things to make myself feel better and they ended up being worse then when I started, especialy when I am down and spend a lot of money on clothes:eek: . I hope you start to feel better and get treatment for your pain.

JEN
 

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Hi Stacielee :wavey:

Welcome to the boards! Cheshire is a very nice part of the world, my parents live there.

I'm sorry to hear what you're going through, I just can't imagine. It must be very frustrating after being well for so long. Are you under the care of any specialist doctors, like a rheumatoloigist? It kind of sounds like you've ping pong'd from one place to the next and no one is willing to take responsibilty for you.

This site is a great place for information and support on getting the best care as a lupus patient. It was invaluable to me when I was first diagnosed. It's a pretty friendly place too :)

I hope things improve for you soon and I look forward to getting to know you.

Hugz,

Pam xxx

P.S. The red hair sounds pretty funky to me :hehe:
 

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hi Stacy. have not had any foot problems. you might try soaking them in some warm espon salts. and maybe something for the inside of your shoes. i look in some of my books and see if i can find out any thing that might help. this is a great site for help. talk with you later Sue
 
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