Hi Meriel,
I don't have Fibro but many here report that changes in steroid dosages upset their Fibro for a little while whilst weaning down. How you will distinguish that from perhaps finding it hard to come off steroids due to persisting Lupus symptoms I don't know though
As Steph said with Lupus steroids usually only help whilst you are on them. If problems continue then he may have to keep you on low dose Pred until the Plaq starts to kick in. Play it by ear though some people respond a little earlier to Plaq than many of us.
love
Lily
I don't have Fibro but many here report that changes in steroid dosages upset their Fibro for a little while whilst weaning down. How you will distinguish that from perhaps finding it hard to come off steroids due to persisting Lupus symptoms I don't know though
As Steph said with Lupus steroids usually only help whilst you are on them. If problems continue then he may have to keep you on low dose Pred until the Plaq starts to kick in. Play it by ear though some people respond a little earlier to Plaq than many of us.
love
Lily