The Lupus Forum banner
1 - 3 of 3 Posts

·
Registered
Joined
·
103 Posts
Discussion Starter · #1 ·
hi all
Havnt been on here for a while as busy working or feeling like hiding lol.
Anyway i have had my 2nd appt with consultant and she has decided that she cant diagnos me because my blood results arent bad enough. although my ANA is quite high my lupus anti coag is fine and so is one other result( i felt okay when i had all this done) . but she is getting me refered to neuro to see about my headaches and pins and needles and cramps.
I just feel like she cant be botherd , in her words i still feel that it is ctd but i am unwilling to diagnos just because your ANA was a bit high lets see you again in a year in the meantime go to neuro and have these bloods done in 9 months time.
I am not very happy and feel really let down , but i also feel bad for feeling this way, i mean if bloods okay theres not much she can do i suppose
ah well .
hope everyone is as well as can be
 

·
Moderator
Joined
·
4,445 Posts
HIya... perhaps its time to get referred to Lupus Clinic in London, either on NHS if you can or perhaps privately for a second opinion... it is awful to not be heard properly and not really trust the person who is supposed to be your medical advocate!!... take heart, you can push on in a different direction now, you know yourself.. and know your health is not right, whatever they say... take care XX
Claire
 

·
Premium Member
Joined
·
7,567 Posts
Hi Angie, I am not suprised you are not happy. A year is an awfully long time to be left. I would go back to the gp and ask for a second opinion. Still keep your symptom diary and photos of rashes etc. Ask to be referred to a lupus specialist, either St Thomas or one near you. Ask for recommendations. Or you could have a private consultation at London Bridge. Don't give up, you know your own body and you know something is wrong. Keep going! Let us know how you get on.

Take care

Deb x
 
1 - 3 of 3 Posts
This is an older thread, you may not receive a response, and could be reviving an old thread. Please consider creating a new thread.
Top