Hello everyone.I hope you are all okay.
I don't know whether this is the right place to post this, so if I 'm wrong I appologise.
My eldest son had an appt with his immunologist last friday to start sublingual immunotherapy for severe hayfever.
He had to start with one drop under the tongue, within about 5 minutes he said he felt faint and the colour drained from his face. He fainted & went into a small seizure , he stopped breathing for about a minute.
They bleeped the consultant , he came and he thought that Craig could have heartblock. He didn't think the immunotherapy had anything to do with it.
We had to go again yesterday , the consultant wanted to try him again but he was going to take precautions.
He checked his pulse first and discovered he has an irregular heartbeat with ectopic beats also. He said he wasn't going to even attempt to carry on because if Craig had anaphalaxis he wouldn't being able to resussitate him and he'd most probably leave the room in a coffin ( his exact words) . He did an Ecg and he's referring him to a cardiologist. He also commented on Craigs chest , I quote; why have you got a great hole in you're chest.
I did go harmed with a list of his past symptoms & a list of family history.
Apart from the worry I have , that he may have Aps or lupus , I also think he could have Marfan syndome, He is over 6ft tall , extremely skinny ( 9. 5 stone)despite eating like a horse most of the time, hypermobile , very sunken chest ,his fingers & toes are very long and boney and his arm span is wider than his height.
My yougest son who is extremely allergic to most things has a hydrocele ,we had to see a surgeon a fortnight ago. He said he needs an operation ,I'm so scared & I don't want him to have it incase he has a reaction to the anaesthetic, he can only tolerate one medicine for pain & only one antibiotic , what if he picks up an infection while he's in hospital.
He's supposed to have the operation March or April , but I would prefer it if They could test him with what they will use on him first.
My anxiety levels are so high at the moment I feel ill.
I'm sorry this was so long , I only seem to come on here lately to moan.
Love
Angied
I don't know whether this is the right place to post this, so if I 'm wrong I appologise.
My eldest son had an appt with his immunologist last friday to start sublingual immunotherapy for severe hayfever.
He had to start with one drop under the tongue, within about 5 minutes he said he felt faint and the colour drained from his face. He fainted & went into a small seizure , he stopped breathing for about a minute.
They bleeped the consultant , he came and he thought that Craig could have heartblock. He didn't think the immunotherapy had anything to do with it.
We had to go again yesterday , the consultant wanted to try him again but he was going to take precautions.
He checked his pulse first and discovered he has an irregular heartbeat with ectopic beats also. He said he wasn't going to even attempt to carry on because if Craig had anaphalaxis he wouldn't being able to resussitate him and he'd most probably leave the room in a coffin ( his exact words) . He did an Ecg and he's referring him to a cardiologist. He also commented on Craigs chest , I quote; why have you got a great hole in you're chest.
I did go harmed with a list of his past symptoms & a list of family history.
Apart from the worry I have , that he may have Aps or lupus , I also think he could have Marfan syndome, He is over 6ft tall , extremely skinny ( 9. 5 stone)despite eating like a horse most of the time, hypermobile , very sunken chest ,his fingers & toes are very long and boney and his arm span is wider than his height.
My yougest son who is extremely allergic to most things has a hydrocele ,we had to see a surgeon a fortnight ago. He said he needs an operation ,I'm so scared & I don't want him to have it incase he has a reaction to the anaesthetic, he can only tolerate one medicine for pain & only one antibiotic , what if he picks up an infection while he's in hospital.
He's supposed to have the operation March or April , but I would prefer it if They could test him with what they will use on him first.
My anxiety levels are so high at the moment I feel ill.
I'm sorry this was so long , I only seem to come on here lately to moan.
Love
Angied
. You certainly seem to be on top of things medically for your boys though! I agree with you that Marfan needs to be more closely looked at where your eldest son is concerned, it is great that you thought of that, a lot of people wouldn't have put the pieces together
